FAMILY COPING WITH CHILDHOOD ILLNESS--A CONTEXTUAL MODE

要求RCDA支持全面的研究计划 研究慢性儿童疾病对社会和 儿童、兄弟姐妹和父母的行为发展。童年 疾病被认为是家庭系统的一个主要扰动， 提供了一个研究家庭如何解决现有问题的机会， 慢性压力如何影响发育转变，以及 家庭重新组织角色和关系，因为对时间的要求更高 和能量。将进行四项主要研究：1）发展一个 衡量问题的情况和应对战略， 患病学龄和青少年儿童及其父母，2）三波 父母应对方式的纵向验证 疗效，3）兄弟姐妹关系，父母 差别待遇和社会支持，以及4）日记研究 研究在抚养慢性病患者与健康人的夫妇中的角色紧张 孩子指导这项研究的理论框架是需要 在定义和衡量方面有更具体的背景 压力和应对过程。由FIRST奖资助的研究申请 行为分析模型，以确定具体的任务， 儿童和青少年患有膀胱癌的问题 纤维化和最有效的应对措施。相比之下， 研究一直受到全球使用的限制，定义不清， 结构。这项研究还寻求通过远离来推进理论 从对个体的研究转向对关系的评估 在家庭系统内;家庭成员之间的一致性程度， 对问题的看法和应对策略的使用将与 比如家庭冲突。RCDA将大大提高我的 作为一个研究人员的发展，使我能够获得培训：1） 动力系统理论与方法，2）密集观测 3）预防性干预措施的制定和评价 为慢性病儿童和他们的家庭提供帮助。家庭制度是一种 这将需要新的模型和数据分析技术， 代表了它的非线性互动模式。史密斯医生会建议 我在应用动态系统理论的建议日记 方法. Corsaro博士，定性数据收集方法专家 有孩子的，将在这方面提供监督。IU糖尿病 研究和培训中心将指导我在设计和 对青少年及其家庭采取干预措施， 会帮助我调整措施以适应他们的人口额外 La Greca博士将提供干预方法培训， 桑德勒这项研究应该促进对 儿童和家庭的长期压力，除了提供 制定预防性行为干预措施的基础。最后通过一个 RCDA将使我能够获得关键的培训经验， 一群杰出的研究人员，以促进我作为一个理论家的成长， 研究员

An RCDA is requested to support a comprehensive research program examining effects of chronic childhood illness on the social and behavioral development of children, siblings, and parents. Childhood illness is conceptualized as a major perturbation of the family system, providing an opportunity to study how families resolve ongoing problems, how developmental transitions are affected by chronic stress, and how families reorganize roles and relationships given greater demands on time and energy. Four major studies will be conducted: 1) development of a measure of problematic situations and coping strategies for chronically- ill school-age and adolescent children and their parents, 2) a three-wave longitudinal validation of the adolescent-parent measure of coping efficacy, 3) a diary study of sibling relationships, parental differential treatment, and social support, and 4) a diary study examining role strain in couples raising a chronically ill vs. healthy child. The theoretical framework guiding this research is the need for greater contextual specificity in the definitions and measurement of stress and coping processes. Studies funded by a FIRST Award apply a behavior-analytic model to identify both the specific tasks and situations that are problematic for children and adolescents with cystic fibrosis and the most effective coping efforts. In contrast, prior research has been limited by the use of global, poorly defined constructs. This research also seeks to advance theory by moving away from the study of individuals toward the evaluation of relationships within family systems; the extent of congruence among family members in perceptions of problems and use of coping strategies will be related to outcomes such as family conflict. An RCDA would greatly enhance my development as a researcher by enabeling me to obtain training in: 1) Dynamical systems theory and methods, 2) Intensive observational techniques, and 3) Development and evaluation of preventive interventions for chronically ill children and their families. The family system is a complex one and will require new models and data analytic techniques to represent its nonlinear pattern of interactions. Dr. Smith will advise me in the application of dynamical systems theory to the proposed diary methods. DR. Corsaro, an expert on qualitative data collection methods with children, will provide supervision in this area. The IU Diabetes Research and Training Center will instruct me in the design and implementation of interventions for adolescents and their families, and will assist in adapting my measures to their population. Additional training in intervention methods will be provided by Drs. La Greca and Sandler. This research should advance understanding of the effects of chronic stress on children and families, in addition to providing the basis for developing preventive behavioral interventions. Finally, an RCDA will enable me to obtain critical training experiences from an eminent group of researchers to facilitate my growth as a theorist and researcher.