INFORMED CONSENT TO DNA BANKING FOR RESEARCH

描述：申请人将继续工作的同意书的DNA 宾夕法尼亚大学的银行。GCRC中的其他患者 研究被邀请捐赠给DNA库;研究人员将使用 作为测试对象来改进同意程序 他们将使用焦点小组，然后是一个“大声思考”的协议（一个修改后的协议）。 焦点小组）和潜在陪审员作为测试人群。然后他们将 随机分配2500名受试者，其中一半将使用知情同意程序， 小插曲，看看这种技术是否能获得更多的知情同意。科目 将完成一份关于同意过程的问卷，评估他们的 理解关键问题。

DESCRIPTION: The applicants will continue work on a consent form for a DNA bank at the University of Pennsylvania. Patients in the GCRC for other studies are invited to donate to the DNA bank; the investigators will use that population as test subjects for an improved consent process. They will use focus groups and then a "think aloud" protocol (a modified focus group) and prospective jurors as test populations. They will then randomize 2500 subjects, half of whom will use a consent process using vignettes, to see if that technique elicits more informed consent. Subjects will complete a questionnaire about the consent process, assessing their understanding of key issues.