CHILD DISABILITY AND THE FAMILY

这是一个由Dennis Hogan领导的布朗大学跨学科团队的提议，该团队将加入NICHD的家庭和儿童福祉研究网络，以加强对儿童残疾和家庭的研究。该小组将把重点放在学龄儿童的残疾问题上：儿童残疾的衡量、残疾前因、医疗服务和康复投入方面的差异、残疾但有残疾兄弟姐妹的残疾以及残疾儿童的父母。我们对无残疾儿童家庭的儿童和父母进行基线比较。个人研究计划侧重于识别残疾儿童和衡量残疾，以便调查(a)残疾对所有儿童的健康、教育、家庭、安全、家庭稳定和结构以及社会发展和问题行为的影响，区分残疾儿童、残疾儿童的兄弟姐妹和无残疾儿童家庭中的儿童；(b)对父母的人口和经济影响。合作研究计划侧重于方法创新，以改进对儿童残疾及其在家庭中的动态的衡量。这包括两个要素：(a)收集关于90名3岁和5岁出生体重极低婴儿的功能和残疾的试点数据，以便更令人满意地解决儿童残疾医学研究中的选择性和控制问题，并制定人口调查中衡量儿童残疾的改进方法，包括网络中使用的方法；(b)合并两个次要数据集，以获得母亲和家庭的生活史，从而阐明儿童残疾的母亲前因和母亲对儿童残疾的反应的动态。

This is a proposal for an interdisciplinary team from Brown University, led by Dennis Hogan, to join NICHD's Family and Child Well-Being Research Network to strength studies of child disability and the family. This team would contribute its focus on disability among school-age children: The measurement of disability among children, differentials in its antecedents and in medical services and rehabilitation inputs, and disabled but who have a disabled sibling, and for the parents of a disabled child. W make baseline comparisons with children and parents from families without child disability. The individual research plan focuses on identifying children with disability and measuring disability in order to investigate (a) its effects on the health, education, family, security, family stability and structure, and social development and problem behavior of all children, distinguishing between children with disability, siblings of children with disability, and children in families without child disability; and (b) the demographic and economic consequences for parents. The cooperative research plan focuses on methodological innovations to improve the measurement of disability among children and its dynamics in families. This includes two elements: (a) the collection of pilot data on the functioning and disability of a cohort of 90 very low birth weight babies at ages 3 and 5, to more satisfactorily address issues of selectivity and controls in medical studies of child disability and to develop improved methodologies to measure child disability in population surveys, including those in use in the Network; and (b) the merging of two secondary data sets to obtain maternal and family life histories, and thus to clarify the dynamics of maternal antecedents of child disability and maternal responses to child disability.