Memory - Identity - Rights in Records - Access: Embedding Participatory Recordkeeping in Child Social Care

《记忆-身份-获取记录中的权利：将参与式记录保存嵌入儿童社会保育》直接源自我们早先的研究拨款《导航公共信息权生态》。后者探讨了英国儿童社会保育方面的信息权，特别是从有保育经验的人的角度，这些人寻求获得关于他们以后生活中童年的记录。这项研究是与我们的第三部门合作伙伴--护理人员协会共同编制的，通过采访、焦点小组和与不同利益攸关方举行的研讨会收集了数据。这一数据有力地支持了从根本上转变为在儿童社会照料环境中采用参与式记录保存方法。目前，记录和记录保存系统面向服务提供者的需要，重点放在风险管理、强制向中央政府报告和满足社会工作者的需要。因此，被照顾的儿童、照顾者和家庭的声音和感受往往缺失或模糊。系统也是专有的，从商业提供商那里采购，很少与邻近服务(如卫生、教育或青年司法)中使用的竞争供应商提供的软件互操作，这使得它们所包含的信息难以共享。只有数量有限的个人才能访问它们，这加剧了一种将记录视为内部、行政和官僚作风的工作文化。相反，我们的研究表明，记录是其他利益相关者，尤其是有护理经验的人自己了解某人生活环境的重要资源。在托儿所和离开托儿所的儿童对记录有着深刻的个人和情感需求，以帮助构建生活叙事和自我意识。因此，记录保存的透明度和公正性极有可能提高他们的幸福感和归属感。使用参与式记录保存系统将使受照料儿童能够更积极地参与记录其生活的记录的创建和管理。这将有助于缓解他们面临的脱节、孤立和丧失权力的问题。他们的声音将被捕捉，他们的经历和感受将集中在一起。同时，参与性记录保存进程将是对最近政府议程的适当回应，这些议程倡导在社会照料环境中采取以儿童为中心的做法。它们将平衡不同记录利益相关者的访问需求，同时也满足关键的立法要求(如2018年数据保护法)。隐私、机密性、准确性和冲突等问题可以以透明和有效的方式加以解决。然而，由于市场上缺乏适当的扶持软件，参与性做法的实施目前受到阻碍。在这个后续项目中，我们将与社会护理系统市场的主要供应商OLM合作，使用我们最初研究的结果和结果作为制定规范的基础，以支持商业上可用的参与式系统的开发。通过将UCL团队与来自OLM的产品设计师和用户体验专家聚集在一起，我们将能够测试一个与我们的建议一致的系统的概念，该系统可以将我们的参与性、公平和公正的社会关怀记录框架嵌入到儿童社会关怀环境中使用的数字工具中。随后，我们将在英格兰、威尔士和苏格兰为儿童服务提供商举办的两个备受瞩目的发布活动中，向多达150个组织展示和传播所产生的规范以及我们最初的研究结果。通过这种方式，该项目将对英国关于社会护理记录保存的辩论做出重要贡献，利用长期变化。

'Memory - Identity - Rights in Records - Access: Embedding Participatory Recordkeeping in Child Social Care' follows directly from our earlier research grant 'Navigating the Public Information Rights Ecology'. The latter explored information rights in the context of child social care in England, particularly from the perspective of care-experienced people who sought access to records about their childhoods later in life. Co-produced with our third sector partners, The Care Leavers' Association, the research collected data through interviews, focus groups and workshops with diverse stakeholders. This data evidenced strong support for a fundamental shift towards participatory recordkeeping approaches in child social care settings. At present recording and recordkeeping systems are oriented towards the needs of service providers, with a focus on risk management, mandatory reporting to central government and the needs of social workers. As a result the voices and feelings of looked after children, carers and families are often missing or obscured. Systems are also proprietary, procured from commercial providers, and are rarely interoperable with the software from competing vendors used in adjacent services (such as health, education or youth justice), making the information they contain difficult to share. They can only be accessed by a limited number of individuals, exacerbating a work culture which sees the record as internal, administrative and bureaucratic. On the contrary our research demonstrated that records are a vital resource for other stakeholders, most especially the care experienced person themselves, in understanding the circumstances of someone's life. Children in care and care leavers have a deep personal and emotional need for records to help construct life narratives and a sense of self. Transparency and equity in recordkeeping therefore has significant potential to increase their wellbeing and sense of belonging. Using participatory recordkeeping systems would enable the child in care to be more actively involved in the creation and management of the records that document their lives. This would help to alleviate the disconnection, isolation and disempowerment they face. Their voices would be captured and their experiences and feelings centralised. At the same time participatory recordkeeping processes would represent a proper response to recent government agendas that advocate for child-centred practices in social care settings. They would balance the access needs of different record stakeholders whilst also meeting key legislative requirements (such as the Data Protection Act 2018). Issues of privacy, confidentiality, accuracy and conflict could be addressed in transparent and efficient ways. However, implementation of participatory practices is currently hindered by the lack of appropriate enabling software on the market. During this follow-on project we will engage with OLM, a major vendor in the social care systems market, to use the findings and outputs of our original research as the basis for the development of the specification required to support the development of a commercially available participatory system. By bringing together the UCL team with product designers and user experience experts from OLM, we will be able to test the concept of a system that aligns with our recommendations, and that can embed our framework for participatory, equitable and just social care recording into the digital tools used in children's social care settings. Subsequently, we will present and disseminate the resulting specification, alongside the findings of our original research, in two high profile launch events for children's service providers in England, Wales and Scotland, reaching up to 150 organisations. In this way the project will make an important contribution to the debates about social care recordkeeping in the UK, leveraging long term change.