Navigating the public information rights ecology: a recordkeeping perspective on supporting information rights
探索公共信息权生态:支持信息权的记录保存视角
基本信息
- 批准号:AH/P008941/1
- 负责人:
- 金额:$ 33.22万
- 依托单位:
- 依托单位国家:英国
- 项目类别:Research Grant
- 财政年份:2017
- 资助国家:英国
- 起止时间:2017 至 无数据
- 项目状态:已结题
- 来源:
- 关键词:
项目摘要
Records and archives, as touchstones of memory, give organisations, communities, families and individuals access to their shared history and values. In family settings, written records and photographs document significant events (births, marriages, deaths), celebratory occasions (birthdays, holidays, anniversaries) and milestones (first day at school, passing an examination, getting a job). Family and personal records are increasingly created and held in digital forms: methods are emerging to assist personal digital recordkeeping. The proposed research will consider how we can better understand the information rights ecology in the public and voluntary sectors in order to support individuals and public authorities in navigating it, for both the public good and for individual information rights. Our data collection will gather qualitative data from data subjects; welfare professionals; information professionals; and users of research data in order to understand all four perspectives on the research questions. Many records about the life of individuals are created and held outside the family unit by organisations and agencies with whom the individual interacts. In the health and social care field this includes local authorities (eg day centres, childcare, education), NHS hospital trusts and GPs (health care), charities and third sector bodies (eg mental health care, social care), national policy and data bodies such as NHS England and Health and Social Care Information Centre (HSCIC) and other agencies. In such a mixed economy of service delivery it is often unclear who is responsible for documenting the services individuals receive, recordkeeping systems are generally incompatible with those of other organisations, and no shared recordkeeping protocols exist. Attempts to share data between agencies for the public good (such as 'care.data' which proposed to link hospital episode data and GP data) have failed to build a social contract of trust about access to data sharing and information rights, privacy and the nature of consent and opt-out. Poor recordkeeping has had a negative impact on the running of public services and on the ability of inquiries into historic abuses to investigate fully (such as The Independent Inquiry into Child Sexual Abuse (IICSA). This research will achieve better understanding of the landscape and enable sharing of good practice and improved recordkeeping in future for citizens, professionals and researchers. The impact of poor recordkeeping on individual lives comes sharply into focus in the specific case of children in care and those who leave care, who usually lack a family setting and family memories. A 2016 report on Care Leavers and Access to Social Care Files warns that care leavers seeking access to their own files face an information rights 'lottery'. Care leavers often have no family memories or records and yet the institutional records created about their lives frequently neglect the individual's needs, treating them as 'data subjects' and refusing to provide information about 'third parties' such as siblings or parents. As part of this research project we will co-create a recordkeeping protocol with the Care Leavers' Association in order to assist the implementation of the 2016 report recommendations.
记录和档案作为记忆的试金石,使组织、社区、家庭和个人能够了解他们共同的历史和价值观。在家庭环境中,书面记录和照片记录了重大事件(出生、结婚、死亡)、庆祝活动(生日、假期、周年纪念日)和里程碑(上学第一天、通过考试、找到工作)。家庭和个人记录越来越多地以数字形式创建和保存:协助个人数字记录保存的方法正在出现。拟议的研究将考虑我们如何更好地了解公共和志愿部门的信息权利生态,以支持个人和公共当局为公共利益和个人信息权利导航。我们的数据收集将从数据主体、福利专业人员、信息专业人员和研究数据使用者那里收集定性数据,以了解研究问题的所有四个角度。关于个人生活的许多记录是由与个人交往的组织和机构在家庭单位之外创建和保存的。在卫生和社会保健领域,这包括地方当局(如日托中心,儿童保育,教育),NHS医院信托基金和GP(卫生保健),慈善机构和第三部门机构(如精神卫生保健,社会保健),国家政策和数据机构,如NHS英格兰和卫生和社会保健信息中心(HSCIC)和其他机构。在这种提供服务的混合经济中,往往不清楚谁负责记录个人获得的服务,记录保存系统通常与其他组织的系统不兼容,也不存在共享的记录保存协议。为了公共利益而在机构之间共享数据的尝试(例如“care.data”,它提议将医院事件数据和全科医生数据联系起来)未能建立一个关于数据共享和信息权利,隐私以及同意和选择退出的性质的信任的社会契约。不良的记录保存对公共服务的运作和对历史性虐待事件的调查能力产生了负面影响(如对儿童性虐待的独立调查)。这项研究将更好地了解景观,并使公民,专业人员和研究人员能够分享良好做法和改善未来的记录保存。记录保存不善对个人生活的影响在被照料儿童和离开照料儿童的具体情况下成为焦点,这些儿童通常缺乏家庭环境和家庭记忆。2016年关于护理离开者和获得社会护理文件的报告警告说,寻求获得自己文件的护理离开者面临信息权利“彩票”。护理离开者通常没有家庭记忆或记录,但有关他们生活的机构记录经常忽视个人的需求,将他们视为“数据主体”,并拒绝提供有关兄弟姐妹或父母等“第三方”的信息。作为该研究项目的一部分,我们将与护理离开者协会共同创建记录保存协议,以协助实施2016年报告的建议。
项目成果
期刊论文数量(8)
专著数量(0)
科研奖励数量(0)
会议论文数量(0)
专利数量(0)
MIRRA app SRS: Memory - Identity - Rights in Records - Access Research Project: a participatory recordkeeping application Software Requirements Specification (SRS)
MIRRA 应用程序 SRS:内存 - 身份 - 记录权利 - 访问研究项目:参与式记录保存应用程序软件需求规范 (SRS)
- DOI:
- 发表时间:2021
- 期刊:
- 影响因子:0
- 作者:Shepherd E
- 通讯作者:Shepherd E
Child Social-Care Recording and the Information Rights of Care-Experienced People: A Recordkeeping Perspective
儿童社会护理记录和有护理经验的人的信息权:记录保存的角度
- DOI:10.1093/social/bcy115
- 发表时间:2018
- 期刊:
- 影响因子:0
- 作者:Hoyle V
- 通讯作者:Hoyle V
Relational and person-centred approaches to archival practice and education
关系型和以人为本的档案实践和教育方法
- DOI:10.15353/joci.v19i1.5234
- 发表时间:2023
- 期刊:
- 影响因子:0
- 作者:Sexton A
- 通讯作者:Sexton A
Recordkeeping and the life-long memory and identity needs of care-experienced children and young people
- DOI:10.1111/cfs.12778
- 发表时间:2020-06-29
- 期刊:
- 影响因子:1.7
- 作者:Hoyle, Victoria;Shepherd, Elizabeth;Flinn, Andrew
- 通讯作者:Flinn, Andrew
A Framework for Person-Centred Recordkeeping Drawn through the Lens of Out-of-Home Child-Care Contexts
通过户外儿童保育环境的视角绘制的以人为本的记录保存框架
- DOI:10.7202/1094876ar
- 发表时间:2022
- 期刊:
- 影响因子:0
- 作者:Lomas E
- 通讯作者:Lomas E
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Elizabeth Shepherd其他文献
Good Stress Gone Bad: Transition Conditions in Transforming Stress from Negative to Positive
好的压力变坏了:将压力从负面转变为正面的过渡条件
- DOI:
- 发表时间:
2017 - 期刊:
- 影响因子:0
- 作者:
S. Shanker;Elizabeth Shepherd - 通讯作者:
Elizabeth Shepherd
Book Review: Thornton W. Mitchell (ed), Norton on Archives: The Writings of Margaret Cross Norton on Archival and Records Management (Chicago: Society of American Archivists, 2001), pp. xxi, 288.
- DOI:
10.1007/s10502-004-2627-8 - 发表时间:
2005-06-24 - 期刊:
- 影响因子:2.100
- 作者:
Elizabeth Shepherd - 通讯作者:
Elizabeth Shepherd
Culture and evidence: or what good are the archives? Archives and archivists in twentieth century England
- DOI:
10.1007/s10502-009-9077-2 - 发表时间:
2009-07-22 - 期刊:
- 影响因子:2.100
- 作者:
Elizabeth Shepherd - 通讯作者:
Elizabeth Shepherd
Information governance, records management, and freedom of information: A study of local government authorities in England
- DOI:
10.1016/j.giq.2010.02.008 - 发表时间:
2010-10-01 - 期刊:
- 影响因子:
- 作者:
Elizabeth Shepherd;Alice Stevenson;Andrew Flinn - 通讯作者:
Andrew Flinn
Bruce W. Dearstyne, Managing Historical Records Programs: A Guide for Historical Agencies
- DOI:
10.1023/a:1024940421910 - 发表时间:
2003-03-01 - 期刊:
- 影响因子:2.100
- 作者:
Elizabeth Shepherd - 通讯作者:
Elizabeth Shepherd
Elizabeth Shepherd的其他文献
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{{ truncateString('Elizabeth Shepherd', 18)}}的其他基金
Memory - Identity - Rights in Records - Access: Embedding Participatory Recordkeeping in Child Social Care
记忆 - 身份 - 记录权利 - 访问:将参与式记录保存纳入儿童社会关怀
- 批准号:
AH/T005343/1 - 财政年份:2020
- 资助金额:
$ 33.22万 - 项目类别:
Research Grant
The impact of the UK Freedom of Information Act on records management in the public sector
英国信息自由法对公共部门记录管理的影响
- 批准号:
AH/F009550/1 - 财政年份:2008
- 资助金额:
$ 33.22万 - 项目类别:
Research Grant
Archives and records management research network (ARMReN)
档案和记录管理研究网络 (ARMReN)
- 批准号:
119774/1 - 财政年份:2006
- 资助金额:
$ 33.22万 - 项目类别:
Research Grant
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