Understanding and supporting the psychological wellbeing of fathers of children with Intellectual Disability (ID)
Understanding and supporting the psychological wellbeing of fathers of children with Intellectual Disability (ID)
批准号:
ES/T008873/1
负责人:
Emma Langley
金额:
$11.79万
依托单位:
依托单位国家:
英国
项目类别:
Fellowship
财政年份:
2019
资助国家:
英国
项目状态:
已结题
起止时间:
2019 至 --
中文摘要
该奖学金的重点是儿童的父母的福祉与智力残疾(ID)(俗称为学习障碍)在英国。有学习障碍的人的智力会下降,学习新事物需要更长的时间,并根据其残疾程度(轻度-中度,重度-深度)在其一生中需要额外的支持。患有ID的人也可能患有其他特定疾病,如自闭症或唐氏综合症。残疾不仅是个人的经历,也是那些照顾和关心残疾人的人的经历。尽管如此,研究并不总是从系统的角度考虑对家庭的影响,这意味着在家庭的背景下考虑儿童,并探讨抚养智障儿童对家庭单位和成员的影响。这项奖学金旨在建立在我的博士工作,以更好地了解ID儿童的家庭,更多地了解他们的经历,并提供可用于支持他们在未来的证据。因此,一个关键的目标将是写我的一些博士研究,以扩大学术界的知识,并与ID儿童的父母和支持他们的专业人士分享研究结果,以改善他们的生活。奖学金中建议的活动将特别关注患有ID的父亲的结果,因为我们对他们的观点和经验知之甚少。通常情况下,当研究人员要求家庭参与研究时,是母亲回应并参与回答关于自己、孩子和家庭的问题,因此研究证据往往集中在母亲身上。这个新项目将与ID儿童的父亲协商,分享我的发现和现有的研究,并获得他们的经验,以便与父亲一起为其他父亲制作一本小册子。这项工作的目的是识别患有ID儿童的父亲,与他们合作,以更好地了解他们的需求,并与他人分享信息。研究金的第三个目的是利用一些现有的大规模数据对ID儿童的父亲进行一些新的研究。这项新的研究将重点关注ID儿童的父亲,研究父亲的幸福感和养育子女的长期结果。这项研究将测试一种名为家庭压力模型的理论(Conger & Donellan,2007),该理论提出,早期家庭逆境(如贫困)通过降低父母的幸福感来影响儿童的发展,这反过来又增加了消极育儿的可能性。这种模式从未在ID儿童的父亲身上进行过测试,因此将是一项独特的研究。
英文摘要
This fellowship focuses on the wellbeing of parents of children with an Intellectual Disability (ID) (commonly known as a learning disability) in the UK. Individuals with a learning disability will have reduced intellectual ability, take longer to learn new things, and will require additional support according to their level of disability (mild-moderate, severe-profound) for the whole of their life. Individuals with ID can also have other specific conditions such as autism or Down's syndrome. Having a disability is not just experienced by the individual but those who care for and about the person with a disability. Despite this, research has not always considered the impact on families from a systems perspective, which means considering the child within the context of their family and exploring the impact that raising a child with ID can have on family units and members. This fellowship looks to build on my PhD work to develop a better understanding of families of children with ID, know more about their experiences, and contribute evidence which can be used to support them in the future. Therefore, a key aim will be to write-up some of my doctoral research to extend knowledge in the academic community and share findings with parents of children with ID and professionals who support them in order to improve their lives. The activities proposed in the fellowship will focus specifically on the outcomes of fathers with ID because we know little about their perspectives and experiences. Typically, when researchers have asked families to take part in research, it is mothers that respond and take part in answering questions about themselves, their child, and their family and so research evidence is often focused on mothers. This new project will consult with fathers of children with ID to share my findings and existing research and to gain their experiences in order to create a booklet with fathers, for other fathers. The aim of this work is to recognise fathers of children with ID, collaborate with them to better understand their needs, and to share information with others. The third aim of the fellowship is to conduct some new research on fathers of children with ID using some existing large-scale data. This new study will focus on fathers of children with ID, looking at the role of father wellbeing and parenting on the long-term outcomes of their children. The research will test a theory called the Family Stress Model (Conger & Donellan, 2007) which proposes that early family adversity (such as poverty) affects child development by reducing the wellbeing of parents, which then in turn increases the likelihood of negative parenting. This model has never been tested with fathers of children with ID and so will be a unique piece of research.
期刊论文(3)
专著(0)
科研奖励(0)
会议论文
Family Relationships and Their Associations With Perceptions of Family Functioning in Mothers of Children With Intellectual Disability.
智力障碍儿童母亲的家庭关系及其与家庭功能认知的关系。
DOI:
10.1352/1944-7558-126.3.187
发表时间:
2021
期刊:
American journal on intellectual and developmental disabilities
影响因子:
--
作者:
[Langley E]
通讯作者:
Langley E
DOI:
10.1111/jir.12692
发表时间:
2019-11-20
期刊:
JOURNAL OF INTELLECTUAL DISABILITY RESEARCH
影响因子:
3.6
作者:
[Langley, E., Totsika, V, Hastings, R. P.]
通讯作者:
Hastings, R. P.
海外基金