Experiences of COVID-19 and recovery: learning from polyphonic voices for communities, policymakers and health and social care providers.

这项研究旨在提高对来自不同社区的患者经历新冠肺炎的方式的了解，提供一个作为Healthtalk.org一部分的在线资源(以告知和支持个人及其家人)，并共同制作灵活的资源，以支持卫生和社会保健人员、社区和政策制定者“重建得更好”。未来几个月，当疫情第一年的经历仍是焦点时，将提供一个关键机会，来记录和学习人们对新冠肺炎的叙述。采访人们的经历将有助于我们理解他们是如何理解(或努力理解)发生在他们身上的事情、恢复过程以及他们关于如何改善服务和社区支持的想法。我们将通过访谈来记录和了解在这些特殊时期与新冠肺炎一起生活的人是什么样子，然后利用我们所学到的东西为公众、社区和服务开发资源。了解新冠肺炎在英国的不同体验方式。我们将对大约75名在不同(非ICU)环境中接受管理/护理的全国不同样本的患者进行深入访谈。开发新的方法，使研究与黑人和少数族裔社区(BAME)的人相关，包括外来务工人员。我们在种族和健康方面有专长的研究人员团队将与他们的网络和PPI合作，设计、实施和应用这项研究。开发基于经验的在线资源(面向患者、公众、政策制定者、护理提供者)，作为在线平台Health talk.org的一部分。自2001年以来，这个久负盛名的获奖网站已经在特定条件的部分发表了110多项研究的结果，并配有视频、音频和动画采访摘录。共同设计，与社区、患者、照顾者、服务提供者在健康和社会关怀方面的实际应用的研究结果。这可能包括(在短期内)支持(长期)新冠肺炎患者康复以及学习如何“重建更好”的服务和社区资源的资源。将研究结果与我们独立收集新冠肺炎叙事的国际合作者确定的结果进行比较。来自全球14个国家的合作者将于2020年12月至2022年12月举行研讨会，在每个国家现有的在线平台(类似于英国的Healthtalk.org)的基础上准备跨国分析和资源。我们组建了一个团队，拥有种族和健康(Douglas，Rai，Qureshi)、患者体验研究(McNiven，Ziebland)、全科(Salisbury，Dixon)、PPI(Ali，Hussain)、服务改进(Locock，Hinton)和在线资源交付(Sanders)方面的专业知识。我们的PPI共同申请者、顾问团和包括BAME社区在内的更广泛的网络将有助于确保我们的面试重点、招聘方法和我们创建的资源具有包容性，并在18个月的项目期间和之后保持相关性。产出包括Healthtalk.org上的新新冠肺炎部分(约75次采访和35个主题摘要)、催化剂电影和戏剧研讨会、同行评议论文、报告、关于与很少听到的团体进行远程研究的方法论文以及与我们的国际合作者的跨国比较。

The study aims to improve understanding of the ways in which patients from diverse communities have experienced COVID-19, provide an online resource as part of Healthtalk.org (to inform and support individuals and their families) and to co-produce flexible resources to support health and social care staff, communities and policy makers to 'build back better'.The coming months, while the experience of the first year of the pandemic is still in focus, provide a critical opportunity to capture and learn from people's narratives of COVID-19. Interviewing people about their experience will help us to understand how they made sense (or struggle to make sense) of what has happened to them, the recovery process and their ideas about how services and community support could be improved. We will use interviews to document and understand what it has been like for people living with and through COVID-19 during these exceptional times and then use what we have learnt to develop resources for the public, community and services.OBJECTIVES1. To understand the different ways in which COVID-19 has been experienced in Britain. We will conduct in-depth interviews with a national, diverse sample of around 75 patients, who have managed/been cared for in different (non-ICU) settings.2. To develop new approaches to make the research relevant to people from black and minority ethnic communities (BAME), including migrant workers. Our team of researchers with expertise in ethnicity and health will work with their networks and PPI on the design, conduct and application of the research.3. To develop an experience-based online resource (for patients, public, policy makers, care providers) as part of the online platform Healthtalk.org. This well-established award winning site has, since 2001, published findings from over 110 studies in condition-specific sections, illustrated with video, audio and animated interview extracts.4. To co-design, with communities, patients, carers, service providers in health and social care practical applications of the findings. This may include (in the shorter term) resources to support recovering (long) COVID-19 patients and learning how to 'build back better' services and community resources.5. To compare findings with those identified by our international collaborators who are independently collecting COVID-19 narratives. The collaborators from 14 countries worldwide are meeting for workshops from December 2020-2022 to prepare cross country analyses and resources in addition to the existing online platforms (similar to Healthtalk.org in UK) in each country.We have assembled a team with expertise in ethnicity and health (Douglas, Rai, Qureshi), research on patients' experiences (McNiven, Ziebland), General Practice (Salisbury, Dixon), PPI (Ali, Hussain), service improvement (Locock, Hinton) and delivery of online resources (Sanders). Our PPI co-applicants, advisory panels and our wider networks including BAME communities will help ensure that our interview focus, recruitment methods and the resources we create are inclusive and remain relevant throughout and beyond the 18 month project.Outputs include a new COVID-19 section on Healthtalk.org (~75 interviews and 35 themed summaries), catalyst films and a theatre workshop, peer reviewed papers, reports, a methods paper on conducting remote research with seldom heard groups and cross country comparisons with our international collaborators.