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Exploring the Inequalities and Diversities in Disabled Young Adult Transitions

Exploring the Inequalities and Diversities in Disabled Young Adult Transitions
探索残疾年轻人转型中的不平等和多样性
批准号:
ES/W011883/1
负责人:
Janice McLaughlin
金额:
$102.84万
依托单位:
依托单位国家:
英国
项目类别:
Research Grant
财政年份:
2023
资助国家:
英国
项目状态:
未结题
起止时间:
2023 至 --

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中文摘要
翻译
残疾青年在从青春期进入成年的过程中面临着许多挑战,虽然一些残疾研究工作探索了围绕儿童和成人健康和社会护理之间的过渡的问题,但对更广泛的过渡情况的考虑要少得多。青年研究对过渡的研究范围更广,但几乎没有考虑残疾作为过渡动态中不平等和多样性的一个关键来源的重要性。专注于影响政策的研究倾向于将过渡视为一个循序渐进的线性过程,具有明确的终点,基于关于成年的规范性假设。这些对一般青年,特别是残疾青年是没有帮助的。这项工作的重点太多地放在个人身上,以及如何鼓励和支持他们做出正确的选择和进行正确的活动,以实现正确的成年目标。如果我们要适当地考虑残疾青年过渡(和其他青年过渡),我们需要超越对独立、选择和责任等价值观的个人和不加批判的理解,以参与形成过渡经历的社会、文化和经济限制。这一点至关重要,因为就业、教育、技术和福利制度等领域的社会和政治变化总体上改变了青年的转型。这些变化在很大程度上使过渡变得更加不稳定,更加依赖家庭资源。然而,对残疾研究、青年研究以及政策和实践的研究没有跟上这些变化,这意味着我们缺乏对残疾青年过渡的影响的理解。重要的是,更深入地了解残疾年轻人在迈向成年之际会发生什么,这既是为了了解他们面临的挑战和可能性,也是为了了解这告诉我们,在以福利紧缩、新自由主义和现在的新冠肺炎为标志的当代英国社会,转型的本质是什么。这项研究是与格拉斯哥和纽卡斯尔及其农村郊区的残疾组织和残疾青年共同开发和共同制作的,将与16-29岁的残疾青年、其他残疾青年的家庭成员以及支持他们和倡导他们的组织合作。格拉斯哥和纽卡斯尔是残疾水平高于平均水平的地区,经济状况严重贫困,这两个地区都受到新冠肺炎的特别影响。将应用一系列定性方法来审查随时间发生的变化、不平等的根源、积极过渡的障碍和推动因素以及正在努力实现的现在和未来的多样性。为期16个月的2次定性叙事访谈将对60名残疾青年进行。将对30名其他残疾青年的家庭成员和30名来自残疾组织的主要告密者进行一次定性叙述访谈。将与残疾青年参与者一起开展一系列以个人和集体研讨会为基础的创造性活动,这些活动将在两次访谈之间进行,为他们之间提供额外的数据点。将对在地方、权力下放和国家一级影响残疾青年生活的关键政策进行详细的政策分析。除了产生学术成果外,该项目还将在其整个生命周期内产生针对实践者和政策制定者以及第三部门和残疾人组织的政策和实践材料。它们将是可访问的,旨在促进服务的变化,使它们以权利为基础,并真正以人为本。该项目将由一个由残疾组织和残疾青年组成的项目咨询小组监督。
英文摘要
Disabled young people face many challenges as they move through adolescence into adulthood, while some disability studies work has explored the issues around transitions between paediatric and adult health and social care, the wider landscape of transitions has been given much less consideration. Youth studies has a more expansive approach to researching transitions, but has done little to consider the significance of disability as a key source of inequality and diversity in transitional dynamics. Research focused on influencing policy has tended to approach transitions as a step-by-step linear process with a clear endpoint, based on normative assumptions about adulthood. These are unhelpful for youth in general and disabled young people in particular. Too much of the focus in this work is on the individual and how they can be encouraged and supported to make the right choices and undertake the right activities to reach the right adulthood goal. If we are to properly consider disabled youth transitions (and other youth transitions) we need to move beyond individual and uncritical understandings of the values of independence, choice and responsibility to engage with the social, cultural and economic constraints that shape transition experiences. This is vital to do because youth transitions in general have been altered by social and political change in areas such as employment, education, technology, and welfare systems. Much of these changes have made transitions more precarious and reliant on family resources. However, research across disability studies, youth studies and policy and practice has not kept up with these changes meaning that our understandings of what shapes disabled youth transitions is lacking. It is important to understand in more depth what happens for disabled young people as they move towards adulthood, both to understand the challenges and possibilities they face, but also for what that tells us about the nature of transitions in a contemporary British society marked by welfare austerity, neoliberalism and now Covid-19. This research, co-developed and co-produced with disability organisations and disabled young people, located in Glasgow and Newcastle and their rural outskirts, will work with disabled young adults aged 16-29, the family members of other disabled young people and organisations who support them and advocate with them. Glasgow and Newcastle are areas of above average levels of disability, significant economic deprivation and are both areas that have been particularly affected by Covid-19. A range of qualitative methods will be applied to examine change over time, sources of inequality, barriers and enablers to positive transitions, and diversities in the presents and futures being worked towards. 2 qualitative narrative interviews over 16 months will be undertaken with 60 disabled young people. One qualitative narrative interview will be undertaken with 30 family members of other disabled young people and 30 with key informants from disability organisations. A range of individual and collective workshop based creative activities will be developed with the disabled young participants that will occur in between the 2 interviews, providing an additional data point between them. Discursive policy analysis will be undertaken of key policies that influence disabled young people's lives at the local, devolved and national level. As well as producing academic outputs the project will produce - throughout its lifetime - policy and practice materials aimed at practitioners and policy makers and third sector and disabled people's organisations. They will be accessible and aim to promote changes in services so they are rights based and are genuinely person centred. The project will be overseen by a Project Advisory Group made up of disability organisations and disabled young people.
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Embodied Selves in Transition: Disabled Young Bodies
  • 批准号:
    ES/I008071/1
  • 项目类别:
    Research Grant
  • 资助金额:
    $28.99万
  • 财政年份:
    2011
  • 负责人:
    Janice McLaughlin
  • 依托单位:
Kinship and genetic journeys: A study of the experiences of families who are referred to paediatric genetics
  • 批准号:
    ES/G007837/1
  • 项目类别:
    Research Grant
  • 资助金额:
    $49.85万
  • 财政年份:
    2008
  • 负责人:
    Janice McLaughlin
  • 依托单位:
海外基金