Young migrants, chronic illness and disability: The case of African children and young people with sickle cell disease who migrate to England

我们对长期患病的流动儿童和年轻人的经历了解很少。解释这一现象的假设是，移民年轻、健康、健全，很少使用医疗服务。该项目将以英国的非洲移民儿童和患有镰状细胞病的年轻人为例，考察患有慢性病的儿童和年轻人移民的经历。患有镰状细胞病的非洲移徙儿童和年轻人需要从一系列不同的服务中获得及时和终身的护理。他们对英国患有镰状细胞疾病的人数有很大贡献。然而，人们对他们的经历知之甚少。该项目将探索：o患有镰状细胞疾病的非洲移民儿童和年轻人如何体验和驾驭英国的医疗和社会保健、教育和社会制度；o他们在新的祖国如何理解和赋予他们的疾病意义，包括他们如何在社会背景下谈判和展示自己的身份；以及o英国国民健康保险制度、教育和第三部门目前在支持非洲移民儿童和患有镰状细胞疾病的年轻人方面的作用。该研究将探索他们如何在新的祖国经历从童年到成年的疾病。它还将探讨卫生、社会和教育服务如何相互作用，并调解年轻移民的疾病经历。该项目将介绍移民健康的重要情况，并探讨年龄、性别、种族、族裔、移民状况、移民前的经历和期望等因素以及东道国的文化和制度如何与非洲移民儿童和年轻人的镰状细胞疾病的经历交织在一起，并在其中起到调解作用。这包括探索他们如何在新的祖国管理自己的疾病。这将通过与非洲移民儿童和患有镰状细胞疾病的年轻人以及通过个人访谈和以艺术为基础的焦点小组讨论来支持他们的专业人员和慈善机构交谈来实现。这项研究将确定改善非洲移民儿童和患有镰状细胞疾病的年轻人的经历的方法。这将通过将非洲移民儿童和患有镰状细胞病的年轻人以及专注于镰状细胞病的慈善机构聚集在一起，审查调查结果，并就如何为政策和实践提供参考来实现这一目标。讨论的结果将被用于开发资源，通过演讲、出版物、动画、视频、艺术品展览、舞台剧和社交媒体活动，向镰状细胞疾病社区、护理和支持提供者、政策制定者、研究人员和更广泛的社会传播研究成果。

We understand little about the experiences of migrant children and young people who have long-standing illnesses. This is explained by assumptions suggesting that migrants are young, healthy and able-bodied and rarely use health services. This project will examine the experiences of children and young people with chronic illnesses who migrate, using African migrant children and young people with sickle cell disease in England as an example. African migrant children and young people with sickle cell disease require prompt and life-long care from a range of different services. They contribute significantly to the number of people living with sickle cell disease in the UK. Little, however, is known about their experiences. The project will explore:o how African migrants children and young people with sickle cell disease experience and navigate the UK's health and social care, educational and social systems;o how they make sense of and give meaning to their illness when in a new homeland, including how they negotiate and present their identity within their social contexts; ando the current role of the NHS, educational and third sectors in supporting African migrant children and young people with sickle cell disease.The research will explore how they experience their illness from childhood to young adulthood in a new homeland. It will also explore how health, social and educational services interact and mediate the young migrants' illness experiences. The project will present a critical account of migrant health and explore how factors such as age, gender, race, ethnicity, immigration status, pre-migration experiences and expectations, along with the host country's culture and systems, intersect and mediates the African migrant children and young people experiences of sickle cell disease. This includes exploring how they manage their illness in a new homeland. This will be achieved by speaking with African migrant children and young people with sickle cell disease and the professionals and charities who support them through individual interviews and art-based focus group discussions.The research will identify ways to improve the experiences of African migrant children and young people with sickle cell disease. This will be achieved by bringing together African migrant children and young people with sickle cell disease and sickle cell disease-focused charities to review the findings and suggest how they might inform policy and practice. Outcomes from the discussions will be used to develop resources for disseminating the research findings to the sickle cell disease communities, care and support providers, policymakers, researchers and the wider society through presentations, publications, an animation, a video, an artwork exhibition, a staged drama, and social media campaigns.