Application of a new paediatric preference based health related quality of life measure; the Child Health Utility 9D

卫生署最近强调了促进健康和福祉的重要性。在相互竞争的医疗保健需求之间做出决策在英国国民健康服务（NHS）中很重要。为了做出更明智的决定，需要了解备选方案的成本和收益。除了延长寿命外，许多干预措施还对生活质量产生影响。在经济评估中，这被合并成一个称为质量调整生命年（QALY）的单一度量。然后，可以根据获得的每个质量质量的成本对干预措施进行比较。已经为成年人制定了量化与健康有关的生活质量的措施，每项措施都有一套与之相关的偏好权重，这些权重是通过对公众的采访得出的。这些给了更理想的健康状态更高的权重。缺乏针对儿童的措施。在过去的三年里，我为孩子们制定了一项新的措施来解决这一差距。我现在需要将这一方法应用到实践中，例如临床试验和其他研究中，这应该会为儿童医疗保健带来更好、更明智的决策。

The Department of Health has recently highlighted the importance of promoting health and well being. Making decisions amongst competing healthcare needs is important in the UK National Health Service (NHS). In order to make more informed decisions, information is needed on the costs and benefits of the alternatives. In addition to increasing length of life, many interventions also have an impact on quality of life. In an economic evaluation, this is combined into a single measure called the quality adjusted life year (QALY). Interventions can then be compared in terms of their cost per QALY gained. Measures that quantify health related quality of life have been developed for adults and each has a set of preference weights associated with them which have been derived from interviews with the general public. These give a higher weight to more desirable health states. Measures that do this for children were lacking. Over the last 3 years I have developed a new measure to do this for children to address this gap. I now need to apply the measure in practice, for example in clinical trials and other studies, which should lead to better and more informed decision making in healthcare for children.