The effect of socioeconomic status on outcomes for people with cystic fibrosis: A longitudinal study

背景不利的人的健康状况比社会上较富裕的人差。在英国和国际上，正在实施旨在减少这些健康差异的政策。然而，事实证明这是困难的，重要的是要更好地了解这些健康差异是如何产生和维持的。在本项目中将以囊性纤维化为例，研究这些过程。囊性纤维化是儿童和青年期重要的慢性疾病。这是一种遗传病，需要大量的医疗和社会支持。我将从健康不平等的角度分析英国和丹麦的国家囊性纤维化登记册。我将调查来自不同社会经济背景的囊性纤维化患者的健康和社会结果。例如，生活在不同社会经济环境中的人在肺功能、获得医疗保健、生存、受教育程度和就业方面是否存在差异？除了提高我们对健康不平等的理解外，该项目还将对囊性纤维化患者所经历的结果进行深入描述。这些见解将为制定改善公共卫生和病人护理的政策提供信息。

People from disadvantaged backgrounds experience worse health than those more well off in society. In the UK and internationally policies are being implemented to try to reduce these differences in health. This is proving difficult, however, and it is important to develop a better understanding of how these health differences are generated and maintained. In this project cystic fibrosis will be used as an example, to investigate these processes. Cystic fibrosis is an important chronic disease of childhood and young adulthood. It is a genetic disease requiring intensive medical and social support. I will analyse the national cystic fibrosis registers from the UK and Denmark from a health inequalities point of view. I will investigate the health and social outcomes experienced by people with cystic fibrosis from different socio-economic backgrounds. For example, are there differences in lung function, access to healthcare, survival, educational attainment and employment, for people living in different socio-economic circumstances? In addition to improving our understanding of health inequalities, this project will generate an in-depth description of the outcomes experienced by people with cystic fibrosis. These insights will inform the development of policies to improve public health and patient care.