Infrastructure and Services - The UK Health Data Research Alliance and Hub Network

汇集健康相关数据并使研究人员能够改善人们的生活将需要与英国各地的专家进行团队合作。就目前而言，与健康相关的信息存储在哪里以及如何存储的变化量是这项改变游戏规则的研究的一个重大障碍。该联盟自2019年以来一直活跃，汇集了NHS数据持有者，大学，慈善机构和行业合作伙伴，以确定共同的挑战，并共同努力，以更好地利用数据。在未来五年内，联盟成员将扩展到非数据托管人和补充团体，包括贸易协会。联盟成员在为HDR UK的活动提供信息方面发挥着核心作用，包括建立和改善支持健康数据研究的基础，使研究人员能够以值得信赖的方式跨组织和健康数据来源开展工作，使研究成为可能。

Bringing together health related data and enabling researchers to improve people’s lives will require teamwork with experts across the UK. As it stands, the amount of variation in where and how health related information is stored is a significant obstacle to this game changing research. The Alliance has been active since 2019, bringing together NHS data holders, Universities, charities and industrial partners to identify common challenges and work together to enable better use of data. In the next five years Alliance membership will be extended to non data custodians and complementary groups, including Trade Assocations.Alliance members play a central role in informing HDR UK’s activities in both building and improving the foundations to support health data research, enabling researchers to work in trustworthy ways across organisations and sources of health data, enabling research that has been impossible until now.