MLTC-M Community of Practice in ECR training on best practice patient and public involvement with diverse populations

对于初级研究人员来说，招募和支持患者和公众参与健康研究可能是一项挑战，特别是当他们想要交谈的人有两个或两个以上的长期健康状况时。我们希望建立一个“实践社区”，帮助初级研究人员、患者和公众相互学习健康研究以及人们可以参与的所有不同方式。我们的社区将包括研究人员、患者代表和公众参与组织者，他们来自几个研究项目，研究受两种或两种以上长期健康状况影响的人。我们将面对面和在线地会面，分享我们的经验，以及我们为接触和接触尽可能多的不同背景的人而采取的各种方法。这将包括从建立一个研究项目到最终分享结果的一切。我们还将培训初级研究人员如何评估一种方法在不同环境和健康条件下的效果，并帮助他们建立支持网络。我们将与其他研究人员和患者群体分享我们学到的经验教训。我们希望，这将导致耐心和公众参与对长期状况的研究，这是尊重并代表英国人口广泛阶层的。这反过来将导致结果反映患者和公众的关切，以及符合人们生活现实的医疗保健和治疗。

Recruiting and supporting patients and the public to get involved in health research can be challenging for junior researchers, especially when the people they want to speak to have two or more long term health conditions. We want to set up a 'Community of Practice' to help junior researchers, patients and members of the public learn from one another about health research and all the different ways people can get involved. Our community will include researchers, patient representatives and public involvement organisers from several research projects studying people affected by two or more long term health conditions. We will meet, both face to face and online, to share our experiences and the various approaches we have taken to reaching and involving people from as many different backgrounds as possible. This will include everything from setting up a research project to sharing the results at the end. We will also train junior researchers in how to assess how well an approach is working, in different settings and health conditions, and help them set up a support network.We will share the lessons we have learned with other researchers and patient groups. We hope that this will result in patient and public involvement in research into long term conditions that is respectful and represents a wide cross section of the UK population. This in turn will lead to findings that reflect the concerns of patients and the public, and health care and treatments that fit with the reality of people's lives.