NATIONAL INFORMATION RESOURCE ON ETHICS/HUMAN GENETICS

本提案申请基因组研究资源拨款(第41页)，用于 国家信息资源的持续活动 肯尼迪伦理学院的伦理学和人类遗传学， 乔治城大学。研究小组将继续 收集、编目、索引和传播有关 人类基因组引发的伦理、法律和社会问题 项目及其在人类遗传学中的应用。这些材料 研究小组收集的资料将存放在国家博物馆 生命伦理学文献参考中心。书目 与ELSI相关的文献引用将被收录在 《生物伦理学》和《生物伦理学年鉴》。四个新的 在线数据库将在下一阶段创建 项目；这些数据库将被称为(1)人类遗传学和 伦理学，(2)人类遗传学和法律，(3)人类遗传学和 新闻，以及(4)基因专利数据库。所有四个数据库 将通过互联网提供在线搜索，并 万维网。

This proposal requests a Genome Research Resource Grant (P41) for the continued activity of the National Information Resource on Ethics and Human Genetics at the Kennedy Institute of Ethics, Georgetown University. The research group will continue to gather, catalog, index, and disseminate information on the ethical, legal, and social issues raised by the human genome project and its applications in human genetics. The materials collected by the research group will be housed at the National Reference Center for Bioethics Literature. Bibliographic citations of ELSI-related documents will be included in BIOETHICSLINE and the annual Bibliography of Bioethics. Four new online databases will be created during the next phase of this project; the databases will be called (1) Human Genetics and Ethics, (2) Human Genetics and the Law, (3) Human Genetics and the News, and (4) the Gene Patent Database. All four databases will be made available for online searching via the Internet and the World Wide Web.