ROUTES OF ACCESS TO GENETIC SERVICES FOR RURAL KY WOMEN

描述(改编自调查员摘要) 拟议项目的目的是深化经验主义 了解农村地区的生殖遗传服务，通过 遗传咨询、检测及相关服务的比较案例研究 在肯塔基州的农村和城市居民中。这项研究明确寻求 描述和分析生殖体验和使用的地区差异 遗传服务与地点、文化和政策的交叉 (“通道”)。这项研究将涉及以下具体问题， 相互关联的目标： 1.更清楚地了解产前筛查和遗传 跨社会地理区域提供和体验测试服务 一个基本上是农村的州。 2.确定“访问路线”(由地点之间的交叉口确定， 政策和文化)到肯塔基州的生殖遗传服务。 3.确定这些通道是否以及如何受到 关于健康、遗传服务和怀孕的国家政策的动态 终止。 4.通过与经历过患有严重遗传疾病的孩子出生的父母的深入访谈，审查获得生殖遗传服务的问题和对生殖遗传服务的看法，特别是农村居民的生殖遗传服务。

DESCRIPTION (adapted from investigator's abstract) The purpose of the proposed project is to deepen empirical understanding of reproductive genetic services in rural areas, through a comparative case study of genetic counseling, testing, and related services among rural and urban residents of Kentucky. The study explicitly seeks to describe and analyze regional variation in experiences and uses of reproductive genetic services as linked to intersections of place, culture, and policy ("routes of access"). The study will address the following specific, inter-related aims: 1. To achieve a clearer understanding of how prenatal screening and genetic testing services are provided and experienced across socio-geographic regions of a substantially rural state. 2. To identify "routes of access" (determined by intersections among place, policy and culture) to reproductive genetic services in Kentucky. 3. To identify whether and how these routes of access may be affected by the dynamics of state policy concerning health, genetic services and pregnancy termination. 4. To examine through in-depth interviews with parents who have experienced the birth of a child with a severe genetic condition issues of access to, and perspectives on, reproductive genetic services, particularly for rural residents.