Context for Filipino CB Cleft Prevention Interventions

描述（由申请人提供）：本提案的目的是在菲律宾社区（CB）干预计划之前获得背景数据，旨在告知人们有关原因和预防唇腭裂的信息。在菲律宾，每500个活产儿中就有1个患有唇裂或不伴有腭裂。这里唇裂的发病率很高，治疗有限或无法获得。人类学报告将亚洲人对疾病原因的信仰描述为超自然现象。如果菲律宾人持有这种信念，那么与他们对原因和预防的理解不一致的干预措施可能不会被接受。因此，一项民族志研究有必要描述有关唇裂的原因、预防和治疗的态度和信念。使用解释模型框架，定性方法将用于描述目前的信念，对原因，预防和治疗的口面裂，并愿意参加预防试验的意愿在菲律宾和卫生保健工作者的口面裂。将对唇腭裂患者或唇腭裂儿童、非唇腭裂患者或唇腭裂儿童以及菲律宾卫生工作者进行深入访谈。面试将按大类进行编码。更具体的描述性子代码将分配给在大类下分组的数据。数据将在每组内部和三个组之间分析主题或概念的规律性。

DESCRIPTION (provided by applicant): The purpose of this proposal is to obtain contextual data prior to planning for community-based (CB) interventions in the Philippines aimed at informing people about causes and preventing orofacial clefting. In the Philippines, 1/500 live born children will have a cleft lip with or without a cleft palate. Here there is a high prevalence of clefting and treatment is limited or unavailable. Anthropological reports describe Asian beliefs about the cause of illness as supernatural. If Filipinos hold this belief then interventions inconsistent with their understanding of cause and prevention may not be accepted. Therefore, an ethnographic study is warranted to describe attitudes and beliefs regarding the cause, prevention and treatment of clefting. Using an explanatory models framework, qualitative methods will be used to describe current beliefs about the causes, prevention and treatment of orofacial clefting, and willingness to participate in prevention trials of orofacial clefts among Filipinos and health care workers. In-depth interviews will be conducted with people who have a cleft or child with cleft, people who neither have cleft or children with cleft, and Filipino health workers. Interviews will be coded for broad categories. More specific descriptive sub-codes will be assigned to the data grouped under the broad categories. Data will be analyzed for regularities in terms of themes or concepts within each group and across the three groups.