NIH Osteoporosis & Related Bone Diseases Resource Center

描述：(摘自申请书)1993年，国会发布了一项 授权提高对骨质疏松症和相关疾病的认识和知识 骨病。作为回应，领先的全国性非营利组织在 该领域，国家骨质疏松症基金会(NOF)，佩吉特基金会 (PF)和成骨不完美基金会(OIF)被选为 在该领域建立第一个国家资源中心。1997年，有28个 100万美国人被诊断为骨质疏松症或面临骨质疏松风险，150万人痛苦 骨折，140亿美元的医疗保健费用，以及数百万人受到 Paget病、成骨不全和其他相关骨病， 国会延长了该中心的授权。NOF及其合作伙伴 建议扩大和扩大目前NIH骨质疏松症的范围和 相关骨病国家资源中心。目标1侧重于 加强该中心的基础设施，扩大其服务。 在咨询委员会的指导下，具体任务包括扩大 获取研究信息和查询服务；促进 中心通过展品和公共服务向医生和公众观众 公告和其他方式；通过网络广泛传播信息 网站和其他电子方法、发言人办公室和印刷品 出版物，如书目、情况说明书和扩展的 时事通讯，致医疗专业人员、管理型医疗组织和 服务不足和高危人群，包括青年、男性和西班牙裔以及 亚裔美国女性。目标2专注于发展合作伙伴关系，以创建 并评估一项促进骨骼健康和减少 一个关键群体-青春期女性未来患骨质疏松症的风险。这个 该计划将基于中心赞助的通信研究 向这些受众传递健康促进信息。AIM 3的目的是 扩大对研究数据的认识和使用。具体努力包括 支持国家骨质疏松症数据小组，收集和 传播关于骨骼疾病和病情的权威统计数据 与骨质疏松症并存，并准备总结报告。

DESCRIPTION: (Taken from the Application) In 1993, Congress issued a mandate to increase awareness and knowledge about osteoporosis and related bone diseases. In response, the leading national nonprofit organizations in the field, the National Osteoporosis Foundation (NOF), The Paget Foundation (PF), and the Osteogenesis Imperfecta Foundation (OIF), were selected to establish the first national resource center in the field. In 1997, with 28 million Americans diagnosed or at risk for osteoporosis, 1.5 million painful fractures, $14 billion in health care costs, and millions affected by Paget's disease, osteogenesis imperfecta, and other related bone diseases, Congress renewed the Center's mandate. NOF and its collaborating partners propose to broaden and expand the reach of the current NIH Osteoporosis and Related Bone Diseases National Resource Center. Aim 1 focuses on strengthening the Center's infrastructure and broadening its services. Under the guidance of an Advisory Council, specific tasks include expanding the acquisition of research information and inquiry services; promoting the Center to physician and public audiences through exhibits, public service announcements and other means; and widely disseminating information via Web sites and other electronic methods, a speaker's bureau, and print publications such as bibliographies, fact sheets, and an expanded newsletter, to medical professionals, managed care organizations, and underserved and at-risk populations, including youth, men, and Hispanic and Asian American women. Aim 2 focuses on developing partnerships to create and evaluate a model education program to enhance bone health and reduce future risk of osteoporosis among a key group---adolescent females. The program will be based on a Center-sponsored communications study of the delivery of health promotion messages to this audience. Aim 3 is intended to expand awareness and use of research data. Specific efforts include supporting the National Osteoporosis Data Group, collecting and disseminating definitive statistics on bone diseases and on conditions co-morbid with osteoporosis, and preparing summary reports.