Consumer Internet Education about Mental Health Quality

描述（由申请人提供）：证据表明，不到50%的精神分裂症患者正在接受与科学证据一致的治疗。可能有许多因素导致这种低水平的表现，与患者，提供者和精神卫生系统的相互作用有关。以前提高质量的努力主要集中在医生身上，在较小程度上集中在系统上。本研究的目标是授权和激活患者了解构成精神分裂症高质量护理的关键要素，并与他或她的临床医生讨论当前治疗和基于证据的护理标准之间的差异，基于Schizophrenia PORT研究。建立在基于网络的CompareYourCare框架开发和测试的责任基金会（FACCT），我们将开发，测试和评估一个互动的精神分裂症基于网络的系统，允许消费者或家庭成员比较当前的治疗以证据为基础的标准。该研究有三个目标：（1）建立精神分裂症的交互式护理质量教育模块，调整比较你的护理TM（FACCT）框架和精神健康结果圆桌会议的工作，并测试这些模块的可接受性和可理解性;（2）根据患者和家庭报告，评估这些模块对社区消费者和家庭与诊所消费者和家庭的相关性和教育价值;以及（3）检查这些模块对消费者和家庭、其提供者以及所接受的护理质量的影响，测试诊所和基于社区的实施策略。基于网络的教育系统将在诊所环境中进行测试，患者在与治疗师进行预定访问之前完成该系统，并在社区环境中进行测试。期望的是，增加消费者和家庭对护理质量标准的了解，将增加与治疗师讨论质量的可能性，以及治疗和循证质量标准之间的一致性。此外，预计教育将增加自我报告的循证治疗依从性。预计这些假设的变化将改善患者结局，包括症状控制、功能状态和生活质量。

DESCRIPTION (provided by applicant): Evidence has shown that less than 50% of persons with schizophrenia are receiving care consistent with the scientific evidence. There are potentially many factors contributing to this low level of performance, associated with the interaction of patients, providers, and the mental health system. Previous efforts to improve quality have focused on the physician and to a lesser extent the system. The goal of this research is to empower and activate the patient to understand key elements of what constitutes high quality care for schizophrenia and to discuss with his or her clinician differences between current treatment and evidence-based quality of care standards, based on the Schizophrenia PORT study. Building on the web-based CompareYourCare framework developed and tested by the Foundation for Accountability (FACCT), we will develop, test and evaluate an interactive schizophrenia web-based system that allows the consumer or family member to compare current treatment to evidence-based standards. The research has three aims: (1) Build interactive quality of care educational modules for schizophrenia, adapting the CompareYourCare TM (FACCT) framework and the work of the Mental Health Outcomes Roundtable, and test these modules for acceptability and understandability; (2) Assess the relevance and educational value of these modules for consumers and families in the community versus in the clinic based on patient and family reports; and (3) Examine the impact of these modules on consumers and families, their providers, and the quality of care received, testing clinic and community-based implementation strategies. The web-based educational system will be tested in a clinic environment, with patients completing it prior to a scheduled visit with their therapist, and in a community environment. The expectation is that increasing the knowledge of consumers and families regarding quality of care standards will increase the likelihood of discussion of quality with a therapist and the congruence between treatment and evidence-based quality standards. Also, education is expected to increase self-reported adherence to evidence-based treatments. These hypothesized changes would be expected to improve patient outcomes, including symptom control, functional status, and quality of life.