Mindfulness Based Stress Reduction Application for African American Caregivers

非裔美国护理人员基于正念的减压应用

• 批准号: 10325000
• 负责人: Karen Alexander
• 金额: $ 25.18万
• 依托单位: COG ANALYTICS, LLC
• 依托单位国家: 美国
• 财政年份: 2021
• 资助国家: 美国
• 起止时间: 2021-08-01 至 2023-07-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10325000
• 关键词: AIDS/HIV problem; Adherence; African American; Anxiety; Asian Americans; Audiotape; Breathing; Caregiver Burden; Caregiver support; Caregivers; Caring; Chronic; Collaborations; Communities; Data; Dementia; Development; Disabled Children; Disease; Ecological momentary assessment; Elements; Emotional; Equation; Exercise; Family; Feedback; Feeling; Financial Support; Friends; Health; Health Personnel; Individual; Intervention; Interview; Lead; Learning; Malignant Neoplasms; Medical; Meditation; Mental Depression; Mental Health; Mental disorders; Modeling; Outcome; Personal Satisfaction; Pharmaceutical Preparations; Phase; Population; Public Health; Questionnaires; Randomized Controlled Trials; Research; Resources; Sampling; Scanning; Services; Small Business Technology Transfer Research; Social Network; Stress; Structure; Target Populations; Techniques; Testing; Time; Universities; Walking; Yoga; base; burden of illness; burnout; care recipients; care systems; caregiving; caucasian American; community based research; design; efficacy testing; exhaust; experience; feasibility trial; follow-up; health disparity; high risk; improved; informal caregiver; informal caregiving; informant; innovation; member; mindfulness; mindfulness-based stress reduction; mobile application; perceived stress; physical conditioning; prevent; respite care; scale up; skills; social; stress management; stressor; usability; week trial

Abstract There are approximately 43.5 million informal (unpaid) caregivers in the U.S., of which 5.6 million are African American. Informal caregivers often provide a variety of types of support including emotional, physical, and financial, to people with chronic conditions.1 Providing care can be very stressful and emotionally and physically exhausting for informal caregivers.2 African American caregivers have unique needs because they are more likely to experience stressors related to limited support for respite care and a lack of access to culturally sensitive health care providers and services,3-5 placing them at higher risk for burnout and adverse health outcomes.6 Thus, preventing or reducing caregiver stress is especially important in order to sustain informal caregiving. One type of intervention that has shown promise in helping caregivers manage stress, anxiety, and depression is Mindfulness-Based Stress Reduction (MBSR). While MBSR is typically taught in face-to-face group sessions, this Phase I STTR proposes to use MBSR components such as sitting meditations, a body scan, and yoga exercises to create a mobile-friendly application (app) tailored for African American informal caregivers of people with chronic conditions. The proposed app, entitled Mindfulness Based Stress Reduction for African American Caregivers (MBSR-AAC), will employ video and audio adaptations of MBSR activities in addition to content tailored for the target population. Although there are numerous mindfulness apps available, none specifically target African American caregivers, a group of people who could greatly benefit from reductions in anxiety and depression, which, in turn, may improve the mental and physical health of their care recipients. The proposed study will use in-depth qualitative interview data from caregivers and key informants to inform the development of the MBSR-AAC and to evaluate its proposed content, including video and audio presentations. After the MBSR-AAC is developed, a feasibility trial will be conducted to examine usability. Also, ecological momentary assessment-style outcome data will be collected to examine the association between number of minutes using the app and real-time perceived stress. Data from the feasibility trial will be used for final refinements, which will leave the MBSR-AAC well-poised for rigorous efficacy testing in Phase II and rapid market scale-up.

抽象的 美国大约有 4350 万非正式（无薪）护理人员，其中 560 万是 非裔美国人。非正式护理人员通常提供各种类型的支持，包括情感、身体、 对于患有慢性病的人来说，以及经济上的压力。1 提供护理可能会带来很大的压力，在情感上和 对于非正式护理人员而言，他们的体力消耗很大。2非裔美国护理人员有独特的需求，因为他们 更有可能经历与临时护理支持有限和缺乏获得服务相关的压力源 对文化敏感的医疗保健提供者和服务，3-5 使他们面临更高的倦怠和不良风险 6 因此，为了维持照护者的健康，预防或减轻照护者的压力尤为重要。 非正式护理。 一种干预措施有望帮助护理人员应对压力、焦虑和焦虑 抑郁症是基于正念的减压（MBSR）。虽然 MBSR 通常是面对面教授的 小组会议，第一阶段 STTR 建议使用 MBSR 组成部分，例如静坐冥想、身体锻炼 扫描和瑜伽练习，创建专为非裔美国人非正式定制的移动友好应用程序 (app) 慢性病患者的护理人员。拟议的应用程序名为“基于正念的减压” 针对非洲裔美国护理人员 (MBSR-AAC)，将采用 MBSR 活动的视频和音频改编 除了针对目标人群量身定制的内容之外。尽管有许多正念应用程序可用， 没有一个专门针对非裔美国护理人员，这一群体可以从 焦虑和抑郁的减少，反过来又可以改善他们的护理人员的身心健康 收件人。 拟议的研究将使用来自护理人员和关键信息提供者的深入定性访谈数据来 为 MBSR-AAC 的发展提供信息并评估其提议的内容，包括视频和音频 演示文稿。 MBSR-AAC开发完成后，将进行可行性试验以检验可用性。还， 将收集生态瞬时评估式结果数据来检查之间的关联 使用应用程序的分钟数和实时感知的压力。可行性试验的数据将用于 最终的改进，这将使 MBSR-AAC 做好准备，在 II 期和快速试验中进行严格的功效测试 市场规模扩大。