Mindfulness Based Stress Reduction Application for African American Caregivers

非裔美国护理人员基于正念的减压应用

• 批准号: 10325000
• 负责人: Karen Alexander
• 金额: $ 25.18万
• 依托单位: COG ANALYTICS, LLC
• 依托单位国家: 美国
• 财政年份: 2021
• 资助国家: 美国
• 起止时间: 2021-08-01 至 2023-07-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10325000
• 关键词: AIDS/HIV problem; Adherence; African American; Anxiety; Asian Americans; Audiotape; Breathing; Caregiver Burden; Caregiver support; Caregivers; Caring; Chronic; Collaborations; Communities; Data; Dementia; Development; Disabled Children; Disease; Ecological momentary assessment; Elements; Emotional; Equation; Exercise; Family; Feedback; Feeling; Financial Support; Friends; Health; Health Personnel; Individual; Intervention; Interview; Lead; Learning; Malignant Neoplasms; Medical; Meditation; Mental Depression; Mental Health; Mental disorders; Modeling; Outcome; Personal Satisfaction; Pharmaceutical Preparations; Phase; Population; Public Health; Questionnaires; Randomized Controlled Trials; Research; Resources; Sampling; Scanning; Services; Small Business Technology Transfer Research; Social Network; Stress; Structure; Target Populations; Techniques; Testing; Time; Universities; Walking; Yoga; base; burden of illness; burnout; care recipients; care systems; caregiving; caucasian American; community based research; design; efficacy testing; exhaust; experience; feasibility trial; follow-up; health disparity; high risk; improved; informal caregiver; informal caregiving; informant; innovation; member; mindfulness; mindfulness-based stress reduction; mobile application; perceived stress; physical conditioning; prevent; respite care; scale up; skills; social; stress management; stressor; usability; week trial

Abstract There are approximately 43.5 million informal (unpaid) caregivers in the U.S., of which 5.6 million are African American. Informal caregivers often provide a variety of types of support including emotional, physical, and financial, to people with chronic conditions.1 Providing care can be very stressful and emotionally and physically exhausting for informal caregivers.2 African American caregivers have unique needs because they are more likely to experience stressors related to limited support for respite care and a lack of access to culturally sensitive health care providers and services,3-5 placing them at higher risk for burnout and adverse health outcomes.6 Thus, preventing or reducing caregiver stress is especially important in order to sustain informal caregiving. One type of intervention that has shown promise in helping caregivers manage stress, anxiety, and depression is Mindfulness-Based Stress Reduction (MBSR). While MBSR is typically taught in face-to-face group sessions, this Phase I STTR proposes to use MBSR components such as sitting meditations, a body scan, and yoga exercises to create a mobile-friendly application (app) tailored for African American informal caregivers of people with chronic conditions. The proposed app, entitled Mindfulness Based Stress Reduction for African American Caregivers (MBSR-AAC), will employ video and audio adaptations of MBSR activities in addition to content tailored for the target population. Although there are numerous mindfulness apps available, none specifically target African American caregivers, a group of people who could greatly benefit from reductions in anxiety and depression, which, in turn, may improve the mental and physical health of their care recipients. The proposed study will use in-depth qualitative interview data from caregivers and key informants to inform the development of the MBSR-AAC and to evaluate its proposed content, including video and audio presentations. After the MBSR-AAC is developed, a feasibility trial will be conducted to examine usability. Also, ecological momentary assessment-style outcome data will be collected to examine the association between number of minutes using the app and real-time perceived stress. Data from the feasibility trial will be used for final refinements, which will leave the MBSR-AAC well-poised for rigorous efficacy testing in Phase II and rapid market scale-up.

摘要 在美国，大约有4350万非正式(无偿)照顾者，其中560万是 非裔美国人。非正式的照顾者通常提供各种类型的支持，包括情感上的，身体上的， 对于患有慢性病的人来说，1提供护理可能会非常有压力，情绪上和 非正式照顾者的体力消耗。2非裔美国照顾者有独特的需求，因为他们 更有可能经历与对喘息护理的支持有限和无法获得 对文化敏感的卫生保健提供者和服务，3-5使他们面临更高的职业倦怠和不良风险 6因此，预防或减少照顾者的压力对于维持 非正式的照顾。 一种干预措施在帮助照顾者管理压力、焦虑和 抑郁症是基于正念的压力减轻(MBSR)。虽然MBSR通常是以面对面的形式教授 小组会议，这个第一阶段STTR建议使用MBSR组件，如坐着冥想，身体 扫描和瑜伽练习，创建为非裔美国人量身定做的移动友好应用程序(APP) 慢性病患者的照顾者。拟议中的应用程序名为基于正念的压力减轻 对于非裔美国人照顾者(MBSR-AAC)，将采用MBSR活动的视频和音频改编 除了为目标人群量身定做的内容之外。尽管有很多正念应用程序可用， 没有人专门针对非洲裔美国人的照顾者，这是一群可以从 减少焦虑和抑郁，这反过来可能会改善他们的心理和身体健康 收件人。 拟议的研究将使用来自照顾者和关键信息者的深入定性访谈数据，以 告知MBSR-AAC的发展，并评估其拟议的内容，包括视频和音频 演示文稿。在MBSR-AAC开发完成后，将进行可行性试验以检查可用性。另外， 将收集生态瞬时评估式结果数据，以检查两者之间的关联 使用该应用程序的分钟数和实时感知的压力。可行性试验的数据将用于 最终的改进，这将使MBSR-AAC在第二阶段和快速进行严格的疗效测试 市场规模扩大。