Mindfulness Based Stress Reduction Application for African American Caregivers

非裔美国护理人员基于正念的减压应用

• 批准号: 10325000
• 负责人: Karen Alexander
• 金额: $ 25.18万
• 依托单位: COG ANALYTICS, LLC
• 依托单位国家: 美国
• 财政年份: 2021
• 资助国家: 美国
• 起止时间: 2021-08-01 至 2023-07-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10325000
• 关键词: AIDS/HIV problem; Adherence; African American; Anxiety; Asian Americans; Audiotape; Breathing; Caregiver Burden; Caregiver support; Caregivers; Caring; Chronic; Collaborations; Communities; Data; Dementia; Development; Disabled Children; Disease; Ecological momentary assessment; Elements; Emotional; Equation; Exercise; Family; Feedback; Feeling; Financial Support; Friends; Health; Health Personnel; Individual; Intervention; Interview; Lead; Learning; Malignant Neoplasms; Medical; Meditation; Mental Depression; Mental Health; Mental disorders; Modeling; Outcome; Personal Satisfaction; Pharmaceutical Preparations; Phase; Population; Public Health; Questionnaires; Randomized Controlled Trials; Research; Resources; Sampling; Scanning; Services; Small Business Technology Transfer Research; Social Network; Stress; Structure; Target Populations; Techniques; Testing; Time; Universities; Walking; Yoga; base; burden of illness; burnout; care recipients; care systems; caregiving; caucasian American; community based research; design; efficacy testing; exhaust; experience; feasibility trial; follow-up; health disparity; high risk; improved; informal caregiver; informal caregiving; informant; innovation; member; mindfulness; mindfulness-based stress reduction; mobile application; perceived stress; physical conditioning; prevent; respite care; scale up; skills; social; stress management; stressor; usability; week trial

Abstract There are approximately 43.5 million informal (unpaid) caregivers in the U.S., of which 5.6 million are African American. Informal caregivers often provide a variety of types of support including emotional, physical, and financial, to people with chronic conditions.1 Providing care can be very stressful and emotionally and physically exhausting for informal caregivers.2 African American caregivers have unique needs because they are more likely to experience stressors related to limited support for respite care and a lack of access to culturally sensitive health care providers and services,3-5 placing them at higher risk for burnout and adverse health outcomes.6 Thus, preventing or reducing caregiver stress is especially important in order to sustain informal caregiving. One type of intervention that has shown promise in helping caregivers manage stress, anxiety, and depression is Mindfulness-Based Stress Reduction (MBSR). While MBSR is typically taught in face-to-face group sessions, this Phase I STTR proposes to use MBSR components such as sitting meditations, a body scan, and yoga exercises to create a mobile-friendly application (app) tailored for African American informal caregivers of people with chronic conditions. The proposed app, entitled Mindfulness Based Stress Reduction for African American Caregivers (MBSR-AAC), will employ video and audio adaptations of MBSR activities in addition to content tailored for the target population. Although there are numerous mindfulness apps available, none specifically target African American caregivers, a group of people who could greatly benefit from reductions in anxiety and depression, which, in turn, may improve the mental and physical health of their care recipients. The proposed study will use in-depth qualitative interview data from caregivers and key informants to inform the development of the MBSR-AAC and to evaluate its proposed content, including video and audio presentations. After the MBSR-AAC is developed, a feasibility trial will be conducted to examine usability. Also, ecological momentary assessment-style outcome data will be collected to examine the association between number of minutes using the app and real-time perceived stress. Data from the feasibility trial will be used for final refinements, which will leave the MBSR-AAC well-poised for rigorous efficacy testing in Phase II and rapid market scale-up.

摘要 在美国，大约有4350万非正式（无薪）照顾者，其中560万人 非裔美国人非正式照顾者往往提供各种类型的支持，包括情感，身体， 1提供护理可能会带来很大的压力和情感上的压力， 非裔美国人照顾者有独特的需求，因为他们 更有可能经历与对喘息护理的支持有限和缺乏获得 对文化敏感的卫生保健提供者和服务，3-5使他们面临更高的倦怠和不良反应风险， 6因此，预防或减少照顾者的压力特别重要， 非正式的问候 一种类型的干预，已显示出承诺，在帮助照顾者管理压力，焦虑， 正念减压（Mindfulness-based Stress Reduction，MBSR）虽然正念减压疗法通常是面对面教授的， 小组会议，这个第一阶段STTR建议使用MBSR组件，如坐着冥想，身体 扫描和瑜伽练习，以创建一个移动友好的应用程序（应用程序）为非裔美国人非正式定制 慢性病患者的护理人员。这款名为Mindfulness Based Stress Reduction的应用 为非洲裔美国人照顾者（MBSR-AAC），将采用视频和音频改编的MBSR活动， 除了为目标人群量身定制的内容。虽然有许多正念应用程序可用， 没有一个专门针对非洲裔美国人的照顾者，一群人谁可以大大受益于 减少焦虑和抑郁，这反过来可能会改善他们的身心健康 受惠人士 拟议的研究将使用来自照顾者和关键知情人的深入定性访谈数据， 为MBSR-AAC的开发提供信息，并评估其拟议内容，包括视频和音频 介绍。在MBSR-AAC开发完成后，将进行可行性试验以检查可用性。还有， 将收集生态瞬时评估式结果数据，以研究 使用应用程序的分钟数和实时感知的压力。可行性试验的数据将用于 最后的改进，这将使MBSR-AAC在II期和快速期的严格疗效测试中做好准备。 市场规模扩大。