Communication and Coping Behaviors in Person with AD

超出所提供的空间。本提案是对PAR-03-056的重新提交，主题#8 -行为医学的基础研究。沟通问题是阿尔茨海默病（AD）患者及其护理人员面临的最困难的问题之一。对于阿尔茨海默病的照顾者和接受照顾者来说，它会增加压力、死亡率和降低生活质量。尽管关于照顾者负担和应对的文献很多，但关于阿尔茨海默病患者如何应对，特别是如何应对沟通问题的研究却很少。文献表明，随着认知障碍的进展，AD患者对应对策略的需求增加。目前的认知测试既不寻找也不承认应对行为，因此可能会错过功能行为的重要标志。因此，我们建议通过开发一种名为交际应对行为检查表（CCBC）的新工具来检查AD患者的这些行为。建议的检查表将测量沟通应对行为的频率和有效性，由70对正常或患有AD的人及其照顾者组成。在本研究中，照顾者或有知识的举报人每隔两周观察和评价沟通应对行为，两年两次。通过多变量分析，我们将优化设计，并将CCBC与其他现有的生活质量、认知和功能沟通指标进行验证。该项目的目的是：1。通过焦点小组和专家小组确定CCBC的形式和内容。2. 描述CCBC当前版本的统计特性。a.制定评分规则。b.确定CCBC检查表中各个项目的分值是否具有临床意义。3. 了解CCBC评分与其他心理、认知和功能测量的相关性。4. 了解CCBC评分如何随着痴呆严重程度和疾病进展而变化。本研究项目的长期目标是识别和突出AD交际应对行为，并最终通过认知和康复来改善AD照顾者和照顾者的沟通和生活质量。网站性能 ======================================== 节结束 ===========================================

EXCEED THE SPACE PROVIDED. This proposal is a resubmission responding to PAR-03-056, topic #8 - Basic Research in Behavioral Medicine. Communication problems are one of the most difficult issues faced by people with AIzheimer's Disease (AD) and their caregivers. It contributes to increased stress, mortality, and decreased quality of life for both AD caregivers and care- receivers. Despite a large literature on caregiver burden and coping, little research has been done on how people with AD cope in general and in particular how they cope with communication problems. The literature suggests that as cognitive impairment progresses, the need for coping strategies by the person with AD increases. Current cognitive tests neither look for nor give credit to coping behaviors and thus may miss important signs of functional behavior. Thus we propose to examine these behaviors of persons with AD by developing a new instrument called the Communicative Coping Behavior Checklist (CCBC). The proposed checklist will measure the frequency and effectiveness of communicative coping behaviors as rated by 70 dyads comprised of normal or persons with AD and their caregivers. For this study, the caregivers or knowledgeable informants will observe and rate communicative coping behaviors for a two week interval, twice in two years. Using multivariate analysis, we will optimize the design and to validate the CCBC with other existing measures of quality of life, cognition and functional communication. The aims of this project are: 1. To finalize the form and content of the CCBC with focus groups and an expert panel. 2. To describe the statistical properties of the current version of the CCBC. a. To develop scoring rules. b. To determine if there are clinically meaningful subscores from the individual items in the CCBC checklist. 3. To understand how the CCBC score(s) correlate(s) with other psychological, cognitive, and functional measures. 4. To understand how the CCBC score(s) change(s) based on dementia severity and progression of the disease over time. The long-term goal of this research program is to identify and highlight AD communicative coping behaviors and ultimately to improve communication and the quality of life of AD caregivers and care-receivers through awareness and rehabilitation. PERFORMANCE SITE ========================================Section End===========================================