Children's Experiences Following Traumatic Brain Injury

描述（由申请人提供）：创伤性脑损伤（TBI）是儿童死亡和发病的主要原因之一。许多脑损伤儿童患有各种认知、行为、社交、情感和身体残疾，这使得他们很难重新融入家庭和社区。先前的研究通过生存、损伤严重程度、功能能力或神经心理状态等指标来定义TBI的结局。虽然父母通常被用作创伤性脑损伤后的代理人（他们代表孩子完成自我报告测量），但他们可能并不完全了解孩子的生活经历。值得注意的是，缺乏关注儿童受伤后对日常生活的感知的研究。这是一项描述性现象学研究，研究对象是8- 12岁的儿童，他们住在家里，创伤性脑损伤后3到12个月。目的是描述创伤性脑损伤后儿童的生活经历，以及儿童认为对他们的健康和幸福重要的因素。与父母的访谈也将进行，以了解他们的代理版本的生活是什么样子的创伤性脑损伤后的孩子。这项研究将有助于描述儿童如何看待创伤性脑损伤后的生活，以及父母如何能够接近他们孩子的观点。从这项研究中获得的知识对于确定护理治疗方法至关重要，这些护理治疗方法与提高创伤性脑损伤儿童的健康和康复有关。

DESCRIPTION (provided by applicant): Traumatic brain injury (TBI) is one of the leading causes of mortality and morbidity in children. Many brain-injured children suffer a variety of cognitive, behavioral, social, emotional, and physical disabilities that makes it difficult for them to integrate back into their family and community. Prior studies have defined outcomes of TBI by indices of survival, injury severity, functional ability, or neuro-psychological status. While parents are commonly used as proxy after a TBI (they complete self-report measures on behalf of their child), they may not have a complete understanding of their child's lived experiences. Noticeably lacking are studies that focus on the child's own perceptions of daily life after injury. This is a descriptive phenomenological study of children 8-1 2 years of age who are living at home and who are from 3 to 12 months post TBI. The purpose is to describe the lived experiences of children following TBI, and the factors children deem important to their health and well-being. Interviews with parents will also be conducted to understand their proxy version of what life post TBI is like for their child. This study will be instrumental in describing how children perceive their life after TBI and how well parents are able to approximate their child's perspective. The knowledge gained from this study will be essential to defining nursing therapeutics that are relevant to enhancing the well-being and recovery of children living with TBI.