Communicating about end of life and related matters in hospice consultations

在临终关怀咨询中，人们如何管理风险、社会角色和沟通困难情绪的关系本项目将调查在绝症背景下，包括恐惧和痛苦在内的困难情绪的沟通。观察性研究将检查现有的临终关怀咨询视频记录语料库，涉及绝症患者，他们的同伴和医疗保健从业人员（HCP：姑息医学医生，物理治疗师和职业治疗师）。主管先前的工作表明，这些当事人对待情感问题的沟通模棱两可，关于他们是否应该和如何成为焦点和显着的敏感性;这样做的一种方式是暗示存在情感问题（通过“线索”）。与死亡有关的情绪是最难体验和交流的情绪之一，这使得我们的视频语料库对于研究困难情绪的交流特别有价值。监管人员之前已经调查了HCP如何试图启动关于困难情绪的谈话（Pino等人，2016）。在这个项目中，重点将是当病人作出的举动，可以启动这样的沟通。这将有助于社会科学的理解人们如何谈判是否以及如何谈论困难的情绪，建立和增加在这一领域的先前研究（Bericat，2015; Peräkylä和Sorjonen 2012）。研究问题：（1）在咨询过程中，病人在什么时候暗示了他们对死亡的情感担忧？(2)患者是如何表达这些担忧的？(3)HCP以何种方式做出反应？(4)在这个特定的背景下，研究结果如何反映和扩展社会科学对困难情绪的特征、结构和管理的理解？

Ways people manage risks, social roles, and relationships in communicating about difficult emotions in hospice consultationsThe project will investigate communication of difficult emotions including fear and distress in the context of terminal illness. Observational research will examine an existing corpus of video-recordings of hospice consultations involving patients with a terminal illness, their companions, and healthcare practitioners (HCPs: palliative medicine doctors, physiotherapists, and occupational therapists). The supervisors' prior work shows these parties treat communication of emotional matters with equivocality regarding whether and how they should be a focus and marked sensitivity; one way of doing so is to hint at the presence of an emotional concern (through 'cues'). Emotions relating to one's death are amongst the most difficult to experience and communicate about, making our video corpus particularly valuable for examining communication of difficult emotions. The supervisors have previously investigated how HCPs attempt to launch talk about difficult emotions (Pino et al., 2016). In this project, the focus will be on when patients make moves that can initiate such communication. This will contribute to social-scientific understandings of how people negotiate whether and how difficult emotions are talked about, building on and adding to prior research in this area (Bericat, 2015; Peräkylä and Sorjonen 2012). Research questions:(1) At what points within the consultations do patients hint at their emotional concerns relating to dying?(2) In what ways do patients hint at these concerns?(3) In what ways do HCPs respond? (4) How do findings in this specific context reflect and extend social-scientific understandings of the character, construction, and management of difficult emotions?