Consumer Internet Education about Mental Health Quality

描述(申请人提供)：有证据表明，只有不到50%的精神分裂症患者正在接受与科学证据相一致的治疗。可能有许多因素导致这种低水平的表现，与患者、提供者和精神卫生系统的互动有关。以前提高质量的努力都集中在医生身上，在较小程度上集中在系统上。这项研究的目标是授权和激活患者，以了解精神分裂症高质量护理的关键要素，并基于精神分裂症端口研究，与他或她的临床医生讨论当前治疗和循证护理质量标准之间的差异。在问责基金会(FACCT)开发和测试的基于网络的Compare Your Care框架的基础上，我们将开发、测试和评估一个基于网络的互动精神分裂症系统，允许消费者或家庭成员将当前的治疗与循证标准进行比较。这项研究有三个目标：(1)建立精神分裂症的互动护理质量教育模块，采用CompareYour Care TM(FACCT)框架和精神健康结果圆桌会议的工作，并测试这些模块的可接受性和可理解性；(2)基于患者和家庭报告，评估这些模块对社区和诊所中的消费者和家庭的相关性和教育价值；以及(3)检查这些模块对消费者和家庭、他们的提供者以及接受的护理质量的影响，测试诊所和基于社区的实施策略。这种基于网络的教育系统将在诊所环境和社区环境中进行测试，患者将在预定的治疗师访问之前完成测试。期望增加消费者和家庭对护理质量标准的了解，将增加与治疗师讨论质量的可能性，以及治疗和基于证据的质量标准之间的一致性。此外，教育有望增加自我报告的循证治疗的依从性。这些假设的改变有望改善患者的结果，包括症状控制、功能状态和生活质量。

DESCRIPTION (provided by applicant): Evidence has shown that less than 50% of persons with schizophrenia are receiving care consistent with the scientific evidence. There are potentially many factors contributing to this low level of performance, associated with the interaction of patients, providers, and the mental health system. Previous efforts to improve quality have focused on the physician and to a lesser extent the system. The goal of this research is to empower and activate the patient to understand key elements of what constitutes high quality care for schizophrenia and to discuss with his or her clinician differences between current treatment and evidence-based quality of care standards, based on the Schizophrenia PORT study. Building on the web-based CompareYourCare framework developed and tested by the Foundation for Accountability (FACCT), we will develop, test and evaluate an interactive schizophrenia web-based system that allows the consumer or family member to compare current treatment to evidence-based standards. The research has three aims: (1) Build interactive quality of care educational modules for schizophrenia, adapting the CompareYourCare TM (FACCT) framework and the work of the Mental Health Outcomes Roundtable, and test these modules for acceptability and understandability; (2) Assess the relevance and educational value of these modules for consumers and families in the community versus in the clinic based on patient and family reports; and (3) Examine the impact of these modules on consumers and families, their providers, and the quality of care received, testing clinic and community-based implementation strategies. The web-based educational system will be tested in a clinic environment, with patients completing it prior to a scheduled visit with their therapist, and in a community environment. The expectation is that increasing the knowledge of consumers and families regarding quality of care standards will increase the likelihood of discussion of quality with a therapist and the congruence between treatment and evidence-based quality standards. Also, education is expected to increase self-reported adherence to evidence-based treatments. These hypothesized changes would be expected to improve patient outcomes, including symptom control, functional status, and quality of life.