EXTENDING ACCESS TO DATA FROM DEMOGRAPHIC SURVEILLANCE SYSTEM SITES IN AFRICA

描述(申请人提供)：非洲大部分地区正在经历一场戏剧性的流行病学转变，其驱动因素是传统传染病管理的持续改善、艾滋病毒和结核病疫情的同时爆发、疟疾的持续影响以及慢性非传染性疾病流行率的迅速上升。可悲的是，很少有代表性、可靠的数据来说明这些显著的变化，或者更重要的是，很少有数据来指导旨在改善局势的干预措施的设计和衡量效果。人口监测系统(DSS)站点的数量迅速增加，正在收集有价值的基于人口的纵向数据，描述这一流行病转变的健康和社会层面，非洲大约20个DSS站点中的许多站点还进行基于人口的健康干预测试和药物试验。这一数据存档和数据使用项目符合教育、科学、文化和科学研究所网站网络的长期计划，该网络的总体目标是广泛提供由数据服务网站产生的独特和有价值的健康和人口数据，并代表与设计干预措施和制定政策更为相关的更多人口。该项目与几个非洲和亚洲DSS站点正在进行的相同身体和认知功能模块的试点项目一起，为设想的关于非洲成年人健康和老龄化的多站点研究奠定了基础。该项目的具体目标是：1)定义和管理决策支持系统数据的标准；2)广泛提供来自一个或多个决策支持系统站点的数据的政策、程序和技术；3)计算与纵向人口数据有关的常用指数、比率和测量的标准化、自动化例行程序；4)数据库设计和地理信息系统工具，以将健康和人口数据与空间和地理信息充分结合；以及5)管理决策支持系统数据的同时纸质和电子档案的方法。南非的阿金库尔人口和健康监测系统站点自愿参加这一试点项目，并承诺在项目结束时利用该项目开发的工具并根据作为该项目一部分制定的政策提供对其数据的访问。该项目的其他成果将包括：1)广泛传播决策支持系统数据所需的技术、工具、政策和程序的试行原型；2)根据决策支持系统数据计算标准衡量标准的原型程序；3)设计和工具以充分整合决策支持系统和地理信息；以及4)密切协调同时进行的决策支持系统数据纸质和电子档案管理的工具。

DESCRIPTION (provided by applicant): Much of Africa is experiencing a dramatic epidemiological transition driven in opposite directions by continuing improvements in the management of traditional infectious diseases, concurrent exploding HIV and TB epidemics, the continuing impact of malaria, and swift increases in the prevalence of chronic non- communicable diseases. Tragically there are very few representative, reliable data to illuminate these remarkable changes, or more importantly to guide the design and measure the effects of interventions aimed at improving the situation. A rapidly growing group of demographic surveillance system (DSS) sites is collecting valuable population-based, longitudinal data describing both the health and social dimensions of this epidemiological transition, and many of the roughly twenty DSS sites in Africa also conduct population-based health intervention testing and drugs trials. This data-archiving and data-use project fits into a long-term plan of the INDEPTH Network of DSS sites which has the overall goal of making the unique and valuable health and population data generated by DSS sites widely available and representative of larger populations that are more relevant to designing interventions and formulating policy. Together with an ongoing pilot of identical physical and cognitive function modules in several African and Asian DSS sites, this project contributes to the foundation of an envisaged multi-site study of adult health and aging in Africa. The specific aims of this project are to develop, prototype and pilot: 1) standards for the definition and management of DSS data, 2) policy, procedures and technology to make the data from one or more DSS sites widely available, 3) standardized, automated routines to calculate commonly used indices, rates and measures relating to longitudinal population data, 4) database designs and GIS tools to fully integrate health and demographic data with spatial and geographic information, and 5) methods to manage concurrent paper and electronic archives of DSS data. The Agincourt Demographic and Health Surveillance system site in South Africa has volunteered itself for this pilot project and is committed to providing access to its data at the end of the project using tools developed by the project and under the policies formulated as part of the project. Additional outcomes of this project will include: 1) piloted prototypes of the technology, tools, policies and procedures necessary to widely disseminate DSS data; 2) prototype routines to calculate standard measures from DSS data; 3) designs and tools to fully integrate DSS and geographic information; and 4) tools to tightly coordinate the management of concurrent paper and electronic archives of DSS data.