Continuation of Thrombosis and Hemostasis Centers Research and Prevention Network

UMDNJ-罗伯特·伍德约翰逊医学院血液学分部赞助了三个成人和儿科联合的止血和血栓形成项目，为整个新泽西州提供服务。新泽西地区血友病项目成立于1976年，用于血友病和相关出血性疾病的综合治疗，与新泽西血友病协会（HANJ）和新泽西 国家卫生和人类服务部（NJ-DOHHS）。血栓中心成立于1992年，是血栓性疾病预防、诊断和治疗的转诊中心。1997年，与普通妇科科、RWJMS的妇女健康倡议和HANJ的出血性疾病妇女委员会密切合作，设立了出血性疾病妇女方案。有必要 制定系统和全面的临床和研究方法，以诊断、治疗和预防跨性别和所有年龄组的凝血和出血障碍，并充分评估这种方法的益处。该项目的目标是将血栓形成、女性出血性疾病和血友病综合护理计划整合到一个组织框架下，并评估这种方法的可行性、结果和益处，特别是在预防长期并发症方面。具体目标是：（一） 实施统一的数据收集，以证明血栓形成倾向和女性出血性疾病人群中现有综合护理的范围和有效性，2）确定血栓形成倾向和女性出血性疾病人群中最佳和有效的综合护理模式，包括有效的预防成分，3）为专科提供者、其他相关的 专业人士和当地的消费者组织。这些项目将通过与新泽西州卫生部和新泽西血友病协会的结构化合作关系进行整合。

The Division of Hematology of UMDNJ-Robert Wood Johnson Medical School sponsors three combined adult and pediatric programs in hemostasis and thrombosis serving the entire state of New Jersey. The New Jersey Regional Hemophilia Program was established in 1976 for the comprehensive care of hemophilia and related bleeding disorders and has strong collaborative relationships with the Hemophilia Association of New Jersey (HANJ) and the New Jersey State Department of Health and Human Services (NJ-DOHHS). The Thrombosis Center, established in 1992, serves as a referral center for the prevention, diagnosis, and treatment of thrombotic disorders. The Women with Bleeding Disorders program was established in 1997 in close collaboration with the Division of General Gynecology, the Women's Health Initiative at RWJMS and the Women with Bleeding Disorders Committee of HANJ. There is a need to develop systematic and comprehensive approaches, clinical as well as investigational, to diagnose, treat and prevent clotting and bleeding disorders across gender and all age categories and to fully evaluate the benefits of such an approach. The goals of this project are to integrate Thrombophilia, Women with Bleeding Disorders, and comprehensive Hemophilia care programs under an organizational umbrella and to evaluate feasibility, outcomes, and benefits of such an approach-particularly in preventing long-term complications. The specific goals are: I) to implement uniform data collection to demonstrate scope and effectiveness of existing comprehensive care in thrombophilia and women with bleeding disorders population, 2) to determine an optimal and effective comprehensivecare model in thrombophilia and women with bleeding disorders populations, including effective prevention components, 3) to develop effective training and outreach programs for subspecialty providers, other related specialties, and locally based consumer organizations. The programs will be integrated through structured collaborative relationships with the New Jersey State Department of Health and the Hemophilia Association of New Jersey.