National Information Resource on Ethics & Human Genetics

描述(由申请人提供)：国家伦理与人类遗传学信息资源(NIREHG)与国家生物伦理文献参考中心(NRCBL，由与国家医学图书馆和其他来源签订的合同资助)合作，并与主题专家咨询委员会协商，提出： 1.继续鉴定、收集和编目关于基因研究的伦理、法律和社会影响(ELSI)的材料； 2.支持在以下书目数据库中检索这些材料：遗传学和伦理学、网上ETHX、PubMed和LOCATORplus；(所有涉及国家人类基因组研究所(NHGRI)资助文件的书目记录都将被标记)； 3.提供查阅所引用材料的途径，如有的话，在因特网上提供全文来源的链接；提供NIREHG文件交付服务；并建议其他数字来源或复印件。 4.继续发展NIREHG的数字持股； 5.维护和进一步发展NIREHG网站，办法是更新《关于ELSI专题的范围说明》的网络版本；提供关于主要遗传专题的QuickBibs；以及通过使用网络爬虫软件加强对选定网站的网络信息的获取； 6.在图书馆、免费电话、印刷、会议、课堂和网络上提供数据库使用方面的参考协助和培训； 7.在适当的会议上和通过媒体宣传NIREHG的收藏和服务。

DESCRIPTION (provided by applicant): The National Information Resource on Ethics & Human Genetics (NIREHG), in cooperation with the National Reference Center for Bioethics Literature (NRCBL, funded by a contract with the National Library of Medicine and other sources) and with the consultation of an Advisory Board of subject matter experts, proposes: 1. To continue the identification, collection, and cataloging of materials on the ethical, legal, and social implications (ELSI) of genetic research; 2. To support the retrieval of these materials in the following bibliographic databases: Genetics and Ethics, ETHX on the Web, PubMed, and LOCATORplus; (all bibliographic records that refer to documents produced with funding from the National Human Genome Research Institute (NHGRI) will be tagged); 3. To provide access to the cited materials by offering links to full-text sources on the Internet, when available; offering a NIREHG document delivery service; and suggesting other sources for digital access or photocopies. 4. To continue to develop the digital holdings of NIREHG; 5. To maintain and further develop the NIREHG Web site by updating the Web editions of the Scope Notes on ELSI topics; featuring QuickBibs on major genetics topics; and enhancing access to web information at selected sites by using webcrawler software; 6. To provide reference assistance and training in database usage in the library, via a toll-free number, in print, at conferences, in the classroom, and via the Web; and 7. To publicize NIREHG's collections and services at appropriate conferences and via the media.