e-Health+: Citizen-driven Information for Healthcare and Wellbeing

该集群将解决缺乏预防和早期医疗保健的问题，以及提供个性化健康信息的相关数字挑战。预防医学或早期治疗可减轻个人和社会的疾病负担。但是，医疗保健服务的重点是后期治疗，当护理需求最迫切。很少有服务在人们生病之前到达他们，以帮助减少发生疾病的风险，或治疗早期疾病以阻止或延迟它变成疾病。因此，医疗保健需要更多地与公民接触，以保持健康。在这方面，“自上而下”的健康运动不起作用，而自我指导，个性化和强化的方法更有效。数字经济的挑战是：从多个来源快速收集有说服力的信息，为个人量身定制，使他们能够在任何地方做出健康的选择。这是一个坚韧的挑战，因为它将越来越多地不仅涉及传统的健康和生活方式数据，而且还涉及通过新的生物技术获得的个人分子数据。如果数字经济的研究能够跨越健康问题的各个层面，从分子到社会因素，它可以促进消费者群体的自我组织，围绕他们的健康需求安排灵活的服务，并改善健康。为了产生能够应对上述电子健康+挑战的研究，我们将聚集来自学术界、专业界、行业和消费者的专家。在2008/2009年，该专题组将通过讲习班、个案研究和范围研究提出新的研究思路。它将确定和完善研究挑战，测试理论的可行性，并规划潜在的项目。该方法将弥合学术学科，并涉及利益相关者社区，包括：患者;护理人员;公民;临床医生; NHS专员;和行业（医疗保健ICT，食品行业，生物制药）。推动集群的人成功地运行跨学科的网络和团队。小组将宣传其活动并积极发展其成员。成功与否将以建立的研究伙伴关系和制定的研究计划的数量来衡量。

This cluster will address the problem of the lack of preventive and early healthcare, and the related digital challenges of providing personalised health information. Preventive medicine or early treatment reduces the burden of disease for individuals and society. But, healthcare services focus on later treatment, when care-needs are most acute. Few services reach people before they become ill, to help reduce the risk of developing disease, or to treat early disease to stop or delay it from turning into illness. So, healthcare needs to engage more with citizens over maintaining wellness. In this respect, 'top-down' health campaigns don't work, whereas self-directed, personalised, and reinforced approaches are more effective. The digital economy challenge is: to quickly assemble persuasive information from multiple sources, tailored to the individual, empowering them to make healthy choices, anywhere. This a tough challenge, because, increasingly, it will involve not only conventional health and lifestyle data, but also personal molecular data, via new biotechnologies. If digital economy research works across the scales of health problems, from molecular to social factors, it can facilitate self-organising groups of consumers to arrange flexible services around their health needs, and improve health.To generate the research able to meet the e-health+ challenge outlined above, we will assemble a cluster of experts from academia, the professions, industry and consumers. In 2008/9, the cluster will generate new research ideas through workshops, case studies and scoping studies. It will identify and refine the research challenges, testing the viability of theories, and planning potential projects. The approach will bridge academic disciplines, and involve stakeholder communities, including: patients; carers; citizens; clinicians; NHS commissioners; and industry (healthcare ICT, food industry, biopharmaceutical). The people driving the cluster run inter-disciplinary networks and teams successfully. The cluster will advertise its activities and evolve its membership actively. Success will be measured as the number of research partnerships formed and research plans produced.