Improving Reporting of Race, Ethnicity, and Language in California

描述（由申请人提供）：加利福尼亚州拥有超过3700万人口，其中包括美国最大的拉丁裔，美洲原住民，太平洋岛民和亚洲人口，其中很大一部分人在语言上是孤立的。有充分证据表明，在种族/族裔少数群体和有语言障碍的群体中，护理方面的差异要大得多。尽管加州要求进行种族、民族和语言报告，但缺乏关于收集什么、如何收集以及何时收集这些数据的具体指导方针，导致报告不一致，这是更好地了解健康差异程度的一个重大障碍。加州全州健康规划和发展办公室（OSHPD）是一个州机构，负责全州患者级医院住院、急诊科和门诊手术数据的常规收集。患者出院数据库每年有超过400万例出院病例，是AHRQ全国住院患者样本中最大的单一组成数据库，也是AHRQ医疗成本和利用项目提供的最大住院患者数据库。每年有超过1000万的急诊和240万的门诊手术报告给OSHPD。针对RFA-HS-10-010，“ARRA OS: 2009年恢复法案有限竞争：用于分析和跟踪比较有效性影响的增强状态数据：改善临床内容和种族数据（R01）。由加州大学的研究人员领导的联合研究小组与加州全州卫生规划和发展办公室的领导合作，提出了一项为期三年的计划性干预措施，以提高目前在OSHPD监管授权范围内的三个数据库中由医院提供的自我报告的种族、民族和主要语言的可靠性、有效性和完整性。拟议项目的目标是：1。对加利福尼亚州和比较州的医院的种族、民族和语言数据收集、报告和准确性进行基线评估。2. 直接提高医院收集的种族、民族和语言信息的准确性和可靠性（直接改进自我报告的数据）。3. 使用补充数据和统计方法改进医院报告的种族和族裔措施（间接改进自我报告的数据）。通过这个由美国人权理事会资助的项目，我们期望对在加州医院接受治疗的病人的种族、族裔和主要语言的报告作出实质性和可持续的改进。

DESCRIPTION (provided by applicant): California is home to a large and diverse population of over 37 million individuals, including the largest Latino, Native American, Pacific Islander, and Asian populations in the U.S. A large percentage of these individuals are linguistically isolated. Disparities in care are well documented to be significantly higher among racial/ethnic minorities and among those with language barriers. Although California requires race, ethnicity, and language reporting, a lack of specific guidelines for what, how, and when this data should be collected has contributed to inconsistency in reporting, a significant barrier to better understanding the magnitude of health disparities. California's Office of Statewide Health Planning and Development (OSHPD), a state agency, is responsible for the routine collection of patient-level hospital inpatient, emergency department, and ambulatory surgery data across the state. The Patient Discharge Database has over 4 million discharges annually and is the largest single constituent database contributing to the AHRQ National Inpatient Sample and the largest inpatient database offered by AHRQ Healthcare Cost and Utilization Project. Over ten million emergency department encounters and 2.4 million ambulatory surgeries are reported to OSHPD annually. In response to RFA-HS-10-010, "ARRA OS: Recovery Act 2009 Limited Competition: Enhanced State Data for Analysis and Tracking of Comparative Effectiveness Impact: Improved Clinical Content and Race-Ethnicity Data (R01)," a team of allied researchers led by investigators from the University of California in collaboration with the leadership of the California Office of Statewide Health Planning and Development, propose a three- year programmatic intervention to improve the reliability, validity, and completeness of self-reported race, ethnicity, and primary language provided by hospitals in the three databases that are currently within OSHPD's regulatory mandate. The aims of the proposed project are to: 1. Perform a baseline assessment of race, ethnicity, and language data collection, reporting, and accuracy in hospitals in California and comparison states. 2. Directly improve the accuracy and reliability of race, ethnicity, and language information collected by hospitals (direct improvement to self-reported data). 3. Use supplemental data and statistical approaches to improve race and ethnicity measures reported by hospitals (indirect improvement to self-reported data). Through this AHRQ-funded project, we expect to make substantial and sustainable improvements to the reporting of race, ethnicity, and primary language among patients receiving care in California's hospitals. PUBLIC HEALTH RELEVANCE: The aim of the proposed research is to incrementally improve the completeness and accuracy of self-report race, ethnicity, and language collected from all patients treated as inpatients, emergency department patients, or receiving ambulatory surgery in California hospitals. Results can be used to more accurately identify and address potential health and healthcare disparities arising through issues related to race, ethnicity, and language.