Youth Mental Health Outcomes Tracking System: Self, Parent, & Clinician-Reported

描述(由申请人提供)：在NIMH的资助下，TeleSage开发了一种最先进的心理健康结果跟踪调查工具，可供公共和私营部门的成年人使用。这项调查目前在田纳西州和爱荷华州范围内使用。不幸的是，没有相应的针对年轻人的尖端调查工具。TeleSage已经在两个全州范围的项目中使用了俄亥俄州天平，但这个工具有几个重要的缺点。该项目的总体目标是开发一个青少年心理健康结果跟踪工具和相关软件，供国家心理健康机构和管理的行为保健组织(MBHO)使用。该包将提供一组题库，用于管理员和临床医生最频繁请求的领域，以及与患者、他们的家人和倡导团体最相关的领域。这些题库将有三个版本：一个由接受精神健康服务的青少年(13-17岁)填写，一个由接受精神健康服务的青少年(5-17岁)的父母填写，一个由接受精神健康服务的青少年(5-17岁)的临床医生填写。各州、机构和MBHO将能够选择与其需求最相关的领域，以及选择技术解决方案(例如，IVR、PC、PDA、触摸屏)，以收集患者报告的数据并向利益相关者提供报告。这个第一阶段的项目将利用与NIH PROMIS计划使用的相同的调查开发技术。TeleSage已经为13个领域开发了核心项目库。将在专家小组审查的基础上制定其他项目。我们将通过对20名青少年(13-17岁)、20名青少年父母和20名治疗青少年的临床医生的认知访谈，对先前开发的13个领域以及新的育儿压力领域和适合用于自闭症谱系障碍的领域进行预测。一个专家小组将审查结果并推荐进行全面验证的项目。将在第二阶段完成对项目的全面验证，使用项目反应时间分析并与黄金标准文书进行比较。此外，还将建立特定答复者领域、西班牙语译文和与现有文书相关领域的人行横道。 公共卫生相关性：青少年的精神疾病与成人的精神疾病在性质上是不同的；因此，需要一种专门针对青年的工具，为这一群体提供可靠和有效的自我评估。该项目旨在为青少年、他们的父母和临床医生开发一种最先进的、多领域的状态结果跟踪工具。建议的工具将通过使用IRT、认知访谈和一套面向DSM的领域来可靠地跟踪5-17岁青年的变化，从而大大改进现有的测量方法。

DESCRIPTION (provided by applicant): With funding from NIMH, TeleSage has developed a state-of-the-art mental health outcomes tracking survey instrument for use with both public- and private-sector adults. This survey is currently in statewide use in Tennessee and Iowa. Unfortunately, no corresponding cutting-edge survey instrument exists for youth. TeleSage has used the Ohio Scales in two state-wide projects, but this instrument has several important shortcomings. The overall aim of this project is to develop a youth mental health outcomes tracking instrument and associated software for use by state mental health agencies and managed behavioral healthcare organizations (MBHO). The package will feature a set of item banks for the domains that are most frequently requested by administrators and clinicians, and which are most relevant to patients, their families, and advocacy groups. There will be three versions of these item banks: one to be completed by youth (ages 13-17) receiving mental health services, one to be completed by parents of youth (ages 5-17) receiving mental health services, and one to be completed by clinicians of youth (ages 5-17) receiving mental health services. States, agencies, and MBHOs will be able to choose the domains most relevant to their needs, as well as select technological solutions (e.g., IVR, PCs, PDAs, touch-screens) for collecting patient-reported data and delivering reports to stakeholders. This Phase I project will utilize the same survey development techniques as those used by the NIH PROMIS initiative. TeleSage has already developed core item pools for 13 domains. Additional items will be developed based on expert panel review. We will pretest items for the 13 previously developed domains, as well as a new parenting stress domain and domains appropriate for use with Autism Spectrum Disorders, using cognitive interviewing with a sample of 20 youth (ages 13-17), 20 parents of youth, and 20 clinicians treating youth. An expert panel will review results and recommend items for full validation. Full validation of items, using IRT analysis and comparisons with gold standard instruments will be completed in Phase II. In addition, respondent-specific domains, a Spanish translation, and crosswalks to the relevant domains of existing instruments will also be created. PUBLIC HEALTH RELEVANCE: Mental illness in adolescents is qualitatively different from mental illness in adults; as such, a youth specific instrument is needed to offer a reliable and valid self-assessment for this population. This project aims to develop a state-of-the-art, multi-domain state outcomes tracking instrument for youth, their parents, and clinicians. The proposed instrument would greatly improve upon existing measures by using IRT, cognitive interviewing, and a DSM-oriented set of domains to reliably track change in youth ages 5-17.