Conceptualization and Measurement of Lung Cancer Stigma

描述(由申请人提供)：肺癌污名对被污名化的个人和公共卫生工作都具有深远和毁灭性的后果。初步数据表明，肺癌患者会因为吸烟状况而受到歧视，肺癌污名对患者的心理、社会和人际关系都有负面影响。然而，对概念的澄清和对适当衡量的综合关注是非常必要的。这项拟议的研究将综合患者、提供者和发表的文献的观点，形成一个连贯的概念蓝图，以开发一种心理测量学上合理的肺癌污名测量方法。具体的研究目标是：1)通过文献回顾和患者访谈(N=36)建立肺癌污名构建的概念框架；2)基于患者访谈、临床专家的评估和患者焦点小组构建初始项目库；3)通过使用认知访谈和可读性分析来减少和提炼测量项目。这项研究代表了完善概念化的初步努力，所需的概念化需要准确评估肺癌患者的污名，并产生理论上派生的测量。这项研究意义重大，因为它将为开发一种心理测量学上合理的、文化上敏感的肺癌相关耻辱测量方法提供基础。这些发现将为对拟议措施的量化评估以及未来对肺癌污名的心理社会、沟通和行为相关性的计划调查提供基础。最终，这项研究将指导制定干预措施，以解决肺癌污名及其后果。

DESCRIPTION (provided by applicant): Lung cancer stigma has far-reaching and devastating consequences for both stigmatized individuals and public health efforts. Preliminary data suggest that lung cancer patients are stigmatized based on smoking status and that lung cancer stigma has negative psychosocial and interpersonal effects for patients. However, there is a significant need for conceptual clarification and an integrative focus on appropriate measurement. The proposed research will synthesize perspectives from patients, providers and published literature into a coherent conceptual blueprint for developing a psychometrically sound measure of perceived lung cancer stigma. Specific study objectives are to: 1) develop a conceptual framework of the lung cancer stigma construct through literature review and patient interviews (N = 36), 2) Construct an initial item pool based on the patient interviews, assessments from clinical experts, and patient focus groups, 3) Reduce and refine measure items through use of cognitive interviews and a readability analysis. This study represents an initial effort to refine conceptualization needed to accurately assess stigma among lung cancer patients and generate a theoretically-derived measure. This research is significant because it will provide the basis for development of a psychometrically sound and culturally sensitive measure of lung cancer related stigma. The findings will provide a foundation for quantitative evaluation of the proposed measure, as well as future planned investigations into psychosocial, communication, and behavioral correlates of lung cancer stigma. Ultimately, this research will guide the development of interventions to address lung cancer stigma and its consequences.