Archiving and Dissemination of NLTCS Medicaid Data

描述(由申请人提供)：2004年全国长期护理调查(NLTCS)是对老年医疗保险参与者进行的具有全国代表性的纵向调查的第六轮和最后一轮，也是由杜克大学进行的第四轮调查。所有轮次的现场作业都由美国人口普查局负责。1982年和1984年的轮次是由CMS(HCFA)与ASPE联合进行的。1989年、1994年、1999年和2004年的四轮调查由杜克大学进行，经费由NIH/NIA提供，ASPE提供补充资金。从1982年开始，所有轮次的NLTCS记录都与联邦医疗保险记录相关联，并在时间上向前延伸到最新的可用日历年。相关医疗保险文件的部分未识别版本已经并将继续编辑和准备，供符合CMS数据使用协议要求的研究人员使用，该协议涵盖了HIPAA隐私规则下的此类数据的使用。这个为期一年的R03应用程序的具体目标是执行相应的文件编辑和数据处理，以便为2004-2009年期间任何时候活着的所有参与者的链接到NLTCS样本的Medicaid文件(即2004-2009年的MDS和OASIS文件，以及2004-2007年的MAX文件)制定类似的数据发布协议。将与CMS和NIA进行谈判，以确保将关联的医疗补助数据汇编成符合这两个机构关于传播给具有CMS数据使用协议的经批准的研究人员的要求的形式。这将确保这些数据得到现行法律允许的最广泛的传播，并将以一种迅速实现对关联的NLTCS-Medicaid数据的广泛二次分析的方式进行，否则将是不可行的。这种次级分析有很强的潜力进一步推动两个NIA优先领域的研究：健康和残疾的动态；以及长期护理。 公共卫生相关性：NLTCS是美国老年人LTC残疾信息的主要来源。医疗补助是美国LTC服务的最大支付来源。向研究社区提供与NLTCS相关的医疗补助记录将有助于更好地了解所提供的医疗补助服务的成本、类型和影响。

DESCRIPTION (provided by applicant): The 2004 National Long Term Care Survey (NLTCS) was the sixth and final round of a nationally representative longitudinal survey of elderly Medicare enrollees, and the fourth round of the survey conducted by Duke University. Field operations for all rounds were handled by the U.S. Census Bureau. The 1982 and 1984 rounds were conducted by CMS (HCFA) in conjunction with ASPE. The 1989, 1994, 1999, and 2004 rounds were conducted by Duke University with funding from NIH/NIA, with supplemental funding by ASPE. NLTCS records from all rounds were linked to Medicare records beginning in 1982 and extending forward in time to the latest available calendar year. Partially de-identified versions of the linked Medicare files were and continue to be edited and prepared for use by researchers who meet the CMS requirements for Data Use Agreements covering the use of such data under the HIPAA Privacy Rule. The specific aim of this one-year R03 application is to perform corresponding file editing and data processing needed to enable similar data release protocols to be put in place for Medicaid files (i.e., the 2004-2009 MDS and OASIS files, and the 2004-2007 MAX files) linked to the NLTCS sample for all participants who were alive anytime in the period 2004-2009. Negotiations will be conducted with CMS and NIA to ensure that the linked Medicaid data are assembled in a form that meets the requirements of both agencies with respect to dissemination to approved researchers with CMS Data Use Agreements. This will ensure that these data have the broadest possible dissemination allowed under current law, and will do so in a manner that will quickly enable a broad array of secondary analyses of linked NLTCS-Medicaid data that would otherwise not be feasible. Such secondary analyses have strong potential to further advance research in two NIA priority areas: the dynamics of health and disability; and long-term care. PUBLIC HEALTH RELEVANCE: The NLTCS is the premier source of information on LTC disability among the elderly in the U.S. Medicaid is the largest source of payment for LTC services in the U.S. Making the NLTCS- linked Medicaid records available to the research community will lead to a better understanding of the costs, types, and impacts of the Medicaid services being delivered.