The CERTAIN Hub: A Platform for Improved Patient Data Collection and Stakeholder

描述（由申请人提供）：华盛顿州比较有效性研究翻译网络（CERTAIN）进行以患者为中心的比较有效性研究（CER）。利用华盛顿州60家医院中55家与质量改进相关的现有登记，CERTAIN开发了用于提取临床数据的自动化工具，创建了最先进的调查中心以评估患者对医疗保健的看法，并在其他无关的医疗保健提供系统中建立了能力、工具和管理协议，以有效地进行全州范围的CER。拟议的基础设施改进和利益攸关方参与活动的扩大将使CERTAIN更加有效，针对更广泛的利益攸关方优先考虑的问题，并确保网络的可持续性。我们提出了以下具体目标：目标1：通过与非临床和门诊患者（使用计算机、移动的设备、平板电脑、纸张）接口的CERTAIN Hub增强CERTAIN基础设施，以评估患者报告结局（PRO）和其他患者护理观点。目标1a试点项目：评估从CERTAIN Hub收集的脊柱手术患者数据的质量和完整性目标2：通过利益相关者社区更有针对性的参与、先进的优先级排序技术以及开发面向最终用户的工具和产品，扩大CERTAIN网络的能力和可持续性目标2a：在利益相关者感兴趣的领域中，使用新颖的多维研究优先排序技术执行有针对性的利益相关者参与活动目标2b：为利益相关者开发查询工具，以评估CERTAIN（网络和数据存储库）解决利益相关者指导的CER问题的能力和准备情况。目标2c：将源自CERTAIN Hub的数据整合到定制的最终用户报告产品中，并评估临床医生、患者、输送系统和付款人的使用和价值感知。总之，这些基础设施的改进和利益相关者的参与活动将使CERTAIN随着时间的推移变得更加有效和可持续。

DESCRIPTION (provided by applicant): The Washington State Comparative Effectiveness Research Translation Network (CERTAIN) conducts patient- centered comparative effectiveness research (CER). Leveraging existing registries related to quality improvement at 55 of Washington State's 60 hospitals, CERTAIN developed automated tools for extraction of clinical data, created a state-of-the-art survey center to assess patient perspectives of healthcare and built the capacity, tools and administrative agreements across otherwise unrelated healthcare delivery systems to efficiently conduct statewide CER. The proposed infrastructure enhancements and expansion of stakeholder engagement activities will make CERTAIN more effective, target a broader range of advisor-prioritized questions and assure the network's sustainability. We propose the following specific aims: Aim 1: Enhance the CERTAIN infrastructure with a CERTAIN Hub that interfaces with patients in non-clinical and outpatient settings (using computers, mobile devices, tablets, paper) to assess Patient Reported Outcomes (PRO) and other patient perspectives of care. Aim 1a Pilot project: Assess the quality and completeness of data gathered from the CERTAIN Hub for patients undergoing spine surgery Aim 2: Expand the capability and sustainability of the CERTAIN network through more targeted engagement of the stakeholder community, advanced prioritization techniques and through the development of end-user oriented tools and products Aim 2a: Perform targeted stakeholder engagement activities using a novel, multi-dimensional research prioritization technique across areas of stakeholder interest (e.g. cancer care, spine, urology, vascular disease, diabetes management) Aim 2b: Develop a query tool for stakeholders to assess the capability and readiness of CERTAIN (both the network and the data repository) to address stakeholder-directed CER questions. Aim 2c: Incorporate CERTAIN Hub-derived data into customized, end-user reporting products and assess use and perceptions of value by clinicians, patients, delivery systems, and payers. Taken together, these infrastructure enhancements and stakeholder engagement activities will enable CERTAIN to be more effective and sustainable over time.