NORTH AMERICAN FETAL THERAPY NETWORK BIANNUAL SCIENTIFIC MEETINGS

NAFTNet会议目标：北美的主要使命 胎儿治疗网络（NAFTNet）是提供一个合作的临床研究网络， 胎儿疾病的自然史，并制定治疗性产前干预措施，以改善 结果。 NAFTNet是美国和加拿大医疗中心的自愿协会， 在胎儿手术和其他形式的多学科护理方面建立了专门知识， 胎儿疾病该网络的建立是为了解决有关胎儿治疗的问题 2004年8月16日至17日举行的国家卫生研究院研讨会上提出的“胎儿治疗：需求”， 评估和未来的方向，”这是由国家儿童研究所支持的 健康和人类发展（NICHD），罕见疾病和国家心脏办公室， 肺和血液研究所。建议成立一个调查员合作小组， 形成临床医生，以帮助制定研究，临床进展和伦理的国家议程， 外地的问题。此外，与会者还认识到，建立这样一个小组将是一项重要的工作， 由于胎儿治疗的创新和创业性质，与会者 来自费城儿童医院、北卡罗来纳州大学、范德比尔特的研讨会 大学医学中心和旧金山弗朗西斯科大学在2000年期间向前推进。 第二年，发展NAFTNet的组织结构，其主要使命是 建立一个合作的临床研究网络，研究胎儿疾病的自然史， 制定产前治疗干预措施，以改善结果。自从最初的介绍 自2005年10月举行会议并应邀参加以来，NAFTNet已从18个增加到23个 北美主要的胎儿治疗机构参与中心已同意（1）同行- 审查和指导提交研究方案的过程（2）参与和支持 NAFTNet批准的协议和（3）机构财政支持。同行评审过程 在科学会议上进行协调，自由交流和传播思想 在参与中心的胎儿领域权威人士中， 诊断和治疗以及代表医学伦理学专业的特设委员， 生物统计学NAFTNet是一个501 c3组织，旨在实现适当的代表性， 妇女和少数种族/族裔以及残疾人的权利。

NAFTNet CONFERENCE PLAN OJECTIVES: The primary mission of the North American Fetal Therapy Network (NAFTNet) is to provide a cooperative clinical research network to study the natural history of fetal diseases and to develop therapeutic prenatal interventions to improve outcomes. NAFTNet is a voluntary association of medical centers in the United States and Canada with established expertise in fetal surgery and other forms of multidisciplinary care for complex disorders of the fetus. The network was created to address issues pertaining to fetal therapy that arose from the NIH workshop held on August 16-17, 2004, "Fetal Treatment: Needs Assessment and Future Directions," which was supported by the National Institutes of Child Health and Human Development (NICHD), the Office of Rare Diseases and the National Heart, Lung, and Blood Institute. It was recommended that a cooperative group of investigators and clinicians be formed to help set a national agenda for research, clinical progress, and ethical issues in the field. Further, it was recognized that the development of such a group would be a challenge due to the innovative and entrepreneurial nature of fetal therapy. Participants at the workshop from the Children's Hospital of Philadelphia, University of North Carolina, Vanderbilt University Medical Center and the University of San Francisco moved forward during the following year to develop the organizational structure of NAFTNet with the primary mission to create a collaborative clinical research network to study the natural history of fetal disease and develop therapeutic prenatal interventions to improve outcomes. Since the initial introductory meeting and invitation to participate in October of 2005, NAFTNet has grown from 18 to 23 major North American fetal therapy units. Participating centers have agreed to (1) a peer- review and mentoring process of submission of research protocols (2) participation and support of NAFTNet approved protocols and (3) institutional financial support. The peer-review process is coordinated in the scientific meetings with a free exchange and dissemination of ideas amongst individuals from the participating centers who are authorities in the areas of fetal diagnosis and treatment and ad hoc members representing the specialties of medical ethics and biostatistics. NAFTNet is a 501c3 organization that seeks to achieve appropriate representation of women and racial/ethnic minorities and persons with disabilities.