Real-Time Data Capture of the Experiences of Blacks in Cancer Clinical Trials

参与癌症临床试验是减少黑人癌症患者之间癌症差异的有效手段，因为它们提供了从领先的医疗保健提供者和研究人员那里获得高质量医疗保健的机会。 许多关于黑人参与癌症临床试验的研究涉及没有癌症或不是癌症幸存者的黑人社区成员。 目前尚不清楚是什么因素真正影响黑人癌症患者参与并留在癌症临床试验中。 此外，我们不知道患有癌症的黑人成年人在临床试验过程中的日常经历。 本申请提出了一种定性描述性研究，使用面对面和实时电话访谈来识别和描述黑人癌症患者在决定参与和继续参与研究时认为重要的因素，并提供丰富的描述他们参与临床研究期间实际发生的事情。这项研究与NINR的使命一致，即提高科学知识，减少临床研究中的健康差异。

DESCRIPTION (provided by applicant): Participation in cancer clinical trials is an effective means of reducing cancer disparities among Black cancer patients because they provide an opportunity to receive high quality health care from leading healthcare providers and researchers. Much of the research about cancer clinical trial participation among Blacks involves members of the Black community who do not have cancer, or who are not cancer survivors. It is not known what factors actually influence Black cancer patients to participate and remain in cancer clinical trials. Moreover, we do not know the day-to-day experiences of Black adults with cancer as they navigate their way through the clinical trial process. This application proposes a qualitative descriptive study using face-to-face and real-time telephone interviews to identify and describe the factors that Black cancer patients consider important in their decision to participate and remain in research and to provide a rich description of what is actually happening during their clinical research participation. This research is consistent with the mission of NINR to enhance scientific knowledge and reduce health disparities in clinical research.