Human Genome Project Documentary History: An Annotated Scholarly Guide to the HGP

描述（由申请人提供）： 冷泉港实验室（CSHL）正在寻求国家医学图书馆（NLM）的支持，以准备一份国际人类基因组计划（HGP）的注释学术指南。人类基因组计划文献史：人类基因组计划注释学术指南（Human Genome Project Documentary History：An Annotated Scholarly Guide to the HGP）本指南将对生物医学研究人员、医学和生命科学历史学家以及生物伦理学家和公共卫生官员具有价值。 这个想法来自于2012年5月在冷泉港实验室（CSHL）举行的一次关于人类基因组计划历史的国际会议。参与者包括科学家、行政人员、作家、出版商、电影制片人、历史学家和资助者。在那次会议上，科学家们介绍了人类基因组计划的不同方面，随后的讨论集中在如何最好地向不同的观众介绍人类基因组计划的历史。 注释学术指南的目的是为学者提供一个工具，可以作为研究人类基因组计划历史的起点。该指南也将是关于人类基因组计划的展览的有益补充，例如由国家人类基因组研究所和史密森学会联合举办的展览，该展览将于2013年开幕，以庆祝人类基因组计划完成十周年（见http：//www.genome.gov/Smithsonian/）。 该指南将涵盖所有已知的美国原始材料，书籍和与人类基因组计划相关的章节。它将包含每个资源的描述，包括联系和访问信息，以及关于资源的持有和主题优势的信息。如果一个集合不是完全集中在HGP上，我们将提供关于集合的哪些部分与HGP相关以及为什么相关的信息。注释的学术指南将提供原始文件，口述历史访谈和其他与人类基因组计划历史相关的主要来源的链接。因此，它将补充一本由国际人类基因组计划参与者撰写的新书，该书将由CSHL出版社出版。这本论文集的编辑将担任注释学术指南的编辑委员会成员。 我们已经调查了现有的关于人类基因组计划的奖学金，并确定了229个机构，拥有与人类基因组计划有关的收藏。这些机构包括公司、美国政府机构、研究机构、大学、委员会/委员会、资助机构、协会、国际政府机构、医院、律师事务所和研究财团。我们还确定了与人类基因组计划有关的50项重大发现和技术。 我们现在正在收集有关人类基因组计划起源和发展的原始资料、书籍和章节的信息。2012年，美国国家人类基因组研究所（NHGRI）聘请了一名档案管理员，同时收集有关NIH收藏的信息。 除了这项研究之外，我们还计划调查高级基因组研究人员，以确定他们认为HGP历史的重要性，以及培训中的基因组研究人员应该知道什么。我们还将采访当代科学和技术的历史学家，了解他们对人类基因组计划历史的重要看法，以及他们对记录人类基因组计划的不同原始材料的潜在研究价值的看法。 人类基因组计划的注释学术指南将以电子书/PDF格式构建，并将提供音频，视频和文档文件的链接，以帮助说明文本中提出的想法和原则。它也将以印刷形式出版。该项目包括研究和制作电子书/PDF格式的指南，将在2013年12月1日至2015年11月30日的两年时间内进行。

DESCRIPTION (provided by applicant): Cold Spring Harbor Laboratory (CSHL) is seeking support from the National Library of Medicine (NLM) to prepare an annotated scholarly guide to the international Human Genome Project (HGP). The tentative title is: Human Genome Project Documentary History: An Annotated Scholarly Guide to the HGP. This guide will be of value to biomedical researchers and historians of medicine and the life sciences, as well as bioethicists and public health officials. This idea came out of an international meeting on the history of the Human Genome Project held in May 2012 at Cold Spring Harbor Laboratory (CSHL). Participants included scientists, administrators, authors, publishers, filmmakers, historians, and funders. At that meeting, scientists gave presentations on different aspects of the HGP, and the discussion that followed centered on how to best present the history of the HGP to different audiences. The goal of the annotated scholarly guide is to provide scholars with a tool that may be used as a starting point for research on the history of the HGP. The guide will also be a useful addition t exhibitions about the HGP, such as the joint exhibition created by the NHGRI and Smithsonian Institution, which will be opening in 2013 to celebrate the 10-year anniversary of the completion of the HGP (see http://www.genome.gov/Smithsonian/). The guide will cover all known U.S. collections of original materials, books, and chapters related to the HGP. It will contain a description of each resource, including contact and access information, as well as information about holdings and subject strengths of the resource. In cases where a collection is not completely focused on the HGP, we will provide information about which parts of the collection are relevant to the HGP and why. The annotated scholarly guide will provide links to collections of original documents, oral history interviews, and other primary sources related to the history of the HGP. As such, it will be complementary to a new book of essays by participants of the international HGP that will be published CSHL Press. The editors of this book of essays will serve as members of the editing committee for the annotated scholarly guide. We have surveyed existing scholarship about the HGP and have identified 229 institutions that have collections related to the HGP. These include companies, U.S. government agencies, research institutes, universities, committees/commissions, funding agencies, associations, international government agencies, hospitals, law firms, and research consortia. We also have identified 50 major discoveries and technologies that are associated with the HGP. We are now in the process of collecting information about collections of original materials, books, and chapters relating to the origins and development of the HGP. Information about collections at the NIH is simultaneously being collected by an archivist hired in 2012 by the National Human Genome Research Institute (NHGRI). In addition to this research, we plan to survey senior genome researchers to determine what they think is important about the history of the HGP, and what genome researchers-in-training should know. We also will interview historians of contemporary science and technology to find out what they think is important about the history of the HGP, as well as their views about the potential research value of different original materials documenting the HGP. The annotated scholarly guide to the HGP will be built in an e-book/PDF format, and will feature links to audio, video, and document files that help illustrate the ideas and principles put forth i the text. It also will be produced in print format. The project, which includes researching and producing the guide in e- book/PDF format, will be carried out over a two-year period, December 1, 2013 to November 30, 2015.