IGF::OT::IGF VIRTUAL POOLED REGISTRY PROJECT

虚拟汇总注册（VPR）项目将促进保密的中央癌症注册数据库与队列研究、上市后监测和临床试验中现有患者集的联系，以便为这些可能存在于中央癌症注册数据库中的患者提供后续信息。目前这些联系的方法要求研究人员直接与后续过程中涉及的每个注册机构合作，包括准备和完成IRB文件，与注册机构合作提交标准数据集。这通常需要大量的时间和资源，而且经常没有匹配。对于一项大型队列研究，这可能涉及到与美国大部分州和地区中心癌症登记处的直接接触。

The Virtual Pooled Registry (VPR) Project will facilitate the linkage of confidential central cancer registry databases with existing sets of patients included in cohort studies, post-marketing surveillance as well as clinical trials for the purpose of providing follow-up information on these patients who may exist within a central cancer registry’s database. The current method for these linkages requires the researcher to work directly with each registry involved in the follow-up process including preparing and completing IRB documents, working with the registry to submit a standard dataset. This often requires significant time and resources and frequently there are no matches. For a large cohort study this may involve direct contact with a large percent of the State and regional central cancer registries in the United States. The purpose of the VPR project is to create a capacity similar to the National Death Index without the creation of an aggregated national level cancer patient database. The VPR will consist of “one stop shop” process through which an interested researcher could submit one research application and one research file which will undergo one standardized linkage simultaneously at multiple registries.