IGF::OT::IGF: Phase I SBIR Contract - FY17 - Topic 363 - Connecting Cancer Caregivers to Care Teams: Digital Platforms to Support Informal Cancer Caregiving

MyCare2解决方案将向癌症护理机构销售，包括癌症护理人员、患者和提供者的三个独立门户网站。该系统将启用移动功能，并支持基于标准的电子病历集成。MyCare2的主要功能包括症状评估、与护理团队的沟通、护理计划传播、针对护理和护理者自我护理的量身定制的教育内容以及同伴/社区支持。 在家照顾癌症患者的要求往往导致无法满足照顾者的个人和 情感需求和将照顾者置于经历广泛的身体、心理和社交的高风险中 问题。我们的首要目标是开发和评估myCare2，这是一个双重关注的照顾者支持系统， 满足照顾者的护理需求以及个人需求。MyCare2解决方案将是 面向癌症护理组织，包括三个独立的门户网站，供癌症护理人员、患者和 供应商。该系统将启用移动功能，并支持基于标准的电子病历集成。主要MyCare2 功能包括症状评估、与护理团队的沟通、护理计划分发、定制 关于照看和照顾者自我照顾以及同伴/社区支持的教育内容。 我们第一阶段的具体目标是：1)对其他商业软件提供的功能进行竞争性分析 和学术照顾者支持解决方案；2)收集利益相关者对系统功能的反馈，感知 通过焦点小组的可用性和潜在障碍；3)开发以用户为中心的设计myCare2原型 利用我们之前的工作的过程；以及4)对癌症患者、护理人员和提供者进行可用性测试， 我们希望它能证明我们的原型的可用性和有用性。

The myCare2 solution will be marketed to cancer care organizations and include three separate portals for cancer caregivers, patients and providers. The system will be mobile-enabled and support standards-based EHR integration. Primary myCare2 features include symptom assessment, communication with the care team, care plan dissemination, tailored education content for caregiving and for caregiver self-care, and peer/community support. The demands of caring for a cancer patient at home often result in a failure to meet caregivers’ personal and emotional needs and place caregivers at high risk of experiencing a wide array of physical, mental and social issues. Our overarching goal is to develop and evaluate myCare2, a dual-focused caregiver support system that addresses the caregiving needs as well as the personal needs of a caregiver. The myCare2 solution will be marketed to cancer care organizations and include three separate portals for cancer caregivers, patients and providers. The system will be mobile-enabled and support standards-based EHR integration. Primary myCare2 features include symptom assessment, communication with the care team, care plan dissemination, tailored education content for caregiving and for caregiver self-care, and peer/community support. Our Phase I specific objectives are: 1) conduct a competitive analysis of features provided by other commercial and academic caregiver support solutions; 2) collect feedback from stakeholders on system features, perceived usefulness and potential barriers via focus groups; 3) develop the myCare2 prototype with a user-centric design process leveraging our prior work; and 4) conduct usability tests with cancer patients, caregivers, and providers, which we expect to demonstrate the usability and usefulness of our prototype.