Paid Caregiving Among Persons with Dementia: Patient and Family Caregiver Outcomes

项目总结： 这项建议的目的是审查与接受有偿照看的国家相关的因素 对痴呆症患者进行抽样调查，并评估接受有偿护理对患者和他们的影响。 家庭照顾者。随着痴呆症的进展和功能障碍的增加，家庭照顾者往往 无法提供必要的护理水平，使痴呆症患者能够安全地在家中生活。结果, 他们通常求助于付费照顾者(包括家庭健康助手、家庭服务员和个人护理人员 助理)提供额外的实际护理。这些付费照顾者密切参与照顾 痴呆症患者，但往往不被纳入卫生保健团队。有偿服务的最低限度研究 现有的照顾者主要关注劳动力问题，如招聘和留住、工作满意度、 和训练。我们对获得有偿照料者的影响因素知之甚少 照顾痴呆症患者和他们的家庭照顾者。利用全国丰富的数据 具有代表性的国民健康与老龄化趋势研究(NHATS)和全国护理研究的关联 (NSOC)，我们将检查与收到付款相关的个人、家庭和地理因素 痴呆症患者的护理。在根据痴呆症患者的倾向进行匹配后 接受有偿照看，然后我们将研究接受有偿照看对未得到满足的需求的影响 病人(例如，因为没有人帮忙洗澡而不洗碗)。我们还将检查 接受有偿照看对家庭照顾者照看的负面影响的影响(例如， 由于照料造成的情感和身体上的困难。)这些数据将提供高价值的信息，将有助于 政策制定者和卫生系统开发出更好的方法来照顾痴呆症患者。

Project Summary: The purpose of this proposal is to examine factors associated with receipt of paid caregiving in a national sample of persons with dementia and to evaluate the impact of receipt of paid caregiving on patients and their family caregivers. As dementia progresses and functional impairment increases, family caregivers are often unable provide the level of care necessary to allow persons with dementia to live safely at home. As a result, they often turn to paid caregivers (including home health aides, home attendants, and personal care assistants) to provide additional hands-on care. These paid caregivers are intimately involved in the care of persons with dementia, but are often not integrated into the health care team. The minimal study of paid caregivers that exists focuses largely on workforce issues such as recruitment and retention, job satisfaction, and training. We know very little about what factors contribute to receipt of paid caregiving or the impact of that care on persons with dementia and their family caregivers. Utilizing the rich data of the nationally representative National Health and Aging Trends Study (NHATS) and the linked National Study of Caregiving (NSOC,) we will examine the individual, family, and geographic factors associated with receipt of paid caregiving among persons with dementia. After matching persons with dementia based on their propensity to receive paid caregiving, we will then examine the impact of receipt of paid caregiving on the unmet needs of patients (e.g. going without washing up because there is no one to help with bathing.) We will also examine the impact of receipt of paid caregiving on the family caregivers' negative effects of caregiving (e.g. financial, emotional, and physical difficulty due to caregiving.) This data will provide high value information that will help policy makers and health systems develop better ways to care for persons with dementia.