COPECare: A mobile tool for cancer care coordination in Native American communities

项目总结 美国印第安人和阿拉斯加土著人(AI/AN)的癌症死亡率是美国所有种族中最高的 美国。癌症是AI/AN人群的第二大死亡原因，也是最主要的死亡原因之一 导致这一人群过早死亡的原因。这项第一期SBIR计划的整体目标是研究 基于移动和网络的系统支持本地癌症协作的可行性和可接受性 美国社区。遵循以用户为中心的设计方法，我们将明确开发一个新的工具 专为社区卫生代表(CHR)设计，他们主要负责提供教育 向罹患癌症或癌症风险较高的纳瓦霍民族成员提供信息和指导。而CHRS 已被发现对提高癌症健康意识和促进健康素养至关重要，但仍存在差距 在护理协调方面。将在现有移动设备的基础上设计和构建符合文化要求的护理协调支持 这支队伍目前使用的工具直接将护理团队与患者联系起来，并允许简化、 安全可靠的通信。此阶段I中的工作将用于确定如何开发接口 在护理团队和病人之间。在目标1中，我们将对关键线人进行20次形成性采访， 利益攸关方和潜在最终用户，如肿瘤学家、初级保健提供者(PCP)和纳瓦霍民族 让患者了解拟议的技术如何设计为直接支持现有的癌症护理 协调过程。我们将开发用户故事和人物角色来捕获该过程。在目标2中，我们将建立 并设计了一个系统原型，该系统将由纳瓦霍癌症幸存者小组进行审查 以及使用漫游方法的家庭。在目标3中，我们将与另一组目标进行可用性测试 最终用户(5名CHRS、5名乳腺癌患者、5名结直肠癌患者)，以评估 原型。该系统将建立在以社区为基础的健康框架上，重点是乳房的后续护理 和结直肠癌幸存者确诊后的时间点。这个项目的成果将面向未来 开发新的、适合文化的技术，旨在促进合作和协调 在癌症患者和高危癌症患者之间，CHRS，肿瘤学家，PCP和其他癌症护理团队 纳瓦霍民族的成员。这项创新具有很高的公共卫生意义，有可能为其他 美国各地的美洲原住民社区。

PROJECT SUMMARY American Indians and Alaska Natives (AI/AN) have the highest cancer mortality rates of any racial group in the United States. Cancer is the second leading cause of death for the AI/AN population and one of the leading causes of premature death in this population. The overall objective of this Phase I SBIR project is to study the feasibility and acceptability of a mobile- and web-based system to support cancer coordination in Native American communities. Following a user-centered design approach, we will develop a novel tool expressly designed for community health representatives (CHRs) who are primarily tasked with delivering educational information and guidance to members of the Navajo Nation who have or are at high risk of cancer. While CHRs have been found to be critical to raising cancer health awareness and promoting health literacy, a gap remains in care coordination. Culturally appropriate care coordination support will be designed and built on existing mobile tools currently used by this workforce to connect the care team directly with patients and to allow for streamlined, safe and secure communication. Work in this Phase I will be used to determine how to develop the interfacing between the care team and patients. In Aim 1, we will conduct 20 formative interviews with key informants, stakeholders and potential end users, such as oncologists, primary care providers (PCPs), and Navajo Nation patients to understand how the proposed technology can be designed to directly support existing cancer care coordination processes. We will develop user stories and personas to capture the process. In Aim 2, we will build off of Aim 1 and design a prototype of the system that will be reviewed by a panel of Navajo cancer survivors and families using a walkthrough method. In Aim 3, we will conduct usability testing with another cohort of target end users (5 CHRs, 5 breast cancer patients, 5 colorectal patients) to assess feasibility and usability of the prototype. The system will be built on a community-based health framework focusing on follow-up care for breast and colorectal cancer survivors after the point of diagnosis. Results from this project will go towards the future development of novel, culturally-appropriate technologies designed to promote collaboration and coordination between cancer patients and at-risk cancer patients, CHRs, oncologists, PCPs, and other cancer care team members in Navajo Nation. This innovation has high public health significance with the potential to serve other Native American communities across the US.