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SurvivorCare: A digital health solution to support long-term cancer survivorship using patient navigation

SurvivorCare：使用患者导航支持长期癌症生存的数字健康解决方案

基本信息

批准号：
10491778
负责人：
Y. Xian Ho
金额：
$ 73.68万
依托单位：
DIMAGI, INC.
依托单位国家：
美国
项目类别：
财政年份：
2021
资助国家：
美国
起止时间：
2021-09-21 至 2024-08-31
项目状态：
已结题

来源：
https://reporter.nih.gov/project-details/10491778
关键词：
Address Adherence Breast Cancer Center Cancer Patient Cancer Survivor Cancer Survivorship Caring Clinical Colorectal Colorectal Cancer Communication Community Health Aides Computerized Medical Record Coordination and Collaboration Discrimination Documentation Effectiveness Enrollment Environment Face Feedback Future Goals Group Interviews Guidelines Head and Neck Cancer Health Health Insurance Health Services Accessibility Hospitals Improve Access Insurance Coverage Internet Interview Learning Long-Term Care Lung Malignant neoplasm of lung Malignant neoplasm of prostate Minority Modification Oncology Online Systems Patients Performance Pharmaceutical Preparations Phase Population Primary Health Care Production Prostate Readiness Recommendation Research Resource-limited setting Resources Sampling Site Small Business Innovation Research Grant Survivors System Testing Time Training Underserved Population Urban Hospitals Validation Work base cancer care cancer type community based care design digital health disadvantaged population experience follow-up health disparity human centered design implementation efforts improved malignant breast neoplasm member minority patient mobile application perceived discrimination pilot test programs prototype safety net survivorship tool usability web app

项目摘要

Project Summary There is a growing and urgent need to address a gap in transitional and follow-up care for long-term cancer survivors shifting from oncology-based to primary and community-based care. Frontline health workers such as patient navigators and community health workers can support cancer survivors with the transition from oncology- based to primary care. The overall goal of this Phase II SBIR project is to refine and test SurvivorCare, a mobile- /web-based system to support long-term cancer survivorship through patient navigation for low-resource, underserved populations. Following a human-centered design approach and recommendations and learnings from Phase I pilot work, we will develop and test a functional web/mobile application expressly designed for patient navigators and other frontline health workers assisting with patient navigation and cancer survivors through a centralized platform supporting needs related to cancer survivorship care planning. We will achieve our project goal through 3 specific aims: • Specific Aim 1. We will build a functional prototype based on feedback collected in Phase I. Specifically, we will expand the scope of our Phase I work to include support for patients in early stages of survivorship with prevalent cancer types with survivorship care plans and/or patient navigation programs such as colorectal, breast, prostate, lung, and head/neck cancers. ● Specific Aim 2. We will conduct usability testing of a functional prototype with target end users (patient navigators and cancer survivors) to validate content and usability. ● Specific Aim 3. We will conduct beta testing in real-world clinical settings with target end users in two large, urban, safety net hospitals serving diverse, low-resource populations. Results from this project will go towards furthering research and implementation efforts in developing tools to promote collaboration and coordination between frontline health workers, cancer survivors, PCPs, and other cancer care team members to mitigate pronounced health disparities in long-term cancer survivorship.

项目概要解决长期癌症过渡和后续护理方面的差距日益迫切幸存者从基于肿瘤的护理转向初级和社区护理。一线卫生工作者，例如患者导航员和社区卫生工作者可以通过从肿瘤学向癌症幸存者的转变来支持癌症幸存者以初级保健为基础。第二阶段 SBIR 项目的总体目标是完善和测试 SurvivorCare，一个移动 /基于网络的系统，通过资源匮乏的患者导航来支持长期癌症生存，服务不足的人群。遵循以人为本的设计方法以及建议和学习从第一阶段试点工作开始，我们将开发和测试专门设计的功能性网络/移动应用程序患者导航员和其他一线卫生工作者协助患者导航和癌症幸存者通过一个集中平台支持与癌症生存护理规划相关的需求。我们将实现我们的项目目标有 3 个具体目标： • 具体目标 1. 我们将根据第一阶段收集的反馈构建功能原型。具体来说，我们将扩大第一阶段工作的范围，包括为生存早期阶段的患者提供支持流行的癌症类型以及生存护理计划和/或患者导航计划，例如结直肠癌、乳腺癌、前列腺癌、肺癌和头颈癌。 ● 具体目标2. 我们将与目标最终用户（患者）进行功能原型的可用性测试导航员和癌症幸存者）来验证内容和可用性。 ● 具体目标 3. 我们将在现实临床环境中针对两个目标最终用户进行 Beta 测试大型城市安全网医院，为多元化、资源匮乏的人群提供服务。该项目的成果将用于进一步研究和实施工作，开发工具促进一线卫生工作者、癌症幸存者、PCP 和其他人员之间的合作与协调癌症护理团队成员，以减轻长期癌症生存方面明显的健康差异。