Social media use and social support among adolescent siblings of children with cancer

项目总结/摘要 作为一个被诊断患有癌症的孩子的兄弟姐妹可能是一个孤独和不安的经历。当然， 父母、其他家庭和他们的社交网络成员将注意力转向满足医疗和 被诊断患有癌症的儿童的支持需求。癌症儿童的临床表现出多种多样的 不良的心理社会适应不良，包括焦虑，抑郁，疏远，学校运作不良， 生活质量较低。与此同时，高达85%的青少年报告社交媒体的访问和使用，其中许多 说他们一天在线好几次新的研究表明，这些社交媒体介导的 关系和交互（即，社交网络）可以作为该年龄组的重要支持来源， 并更广泛地影响健康结果。根据压力缓冲假说， 社会支持是青少年心理社会结果及其适应家庭生活的关键因素 受到癌症的影响这一建议涉及两个关键的研究目标，尚未得到 在癌症儿童的兄弟姐妹中进行了调查。1)描述社交媒体的作用 SoCwC的自我认同的社会支持网络和2）检查SM使用如何影响关系 在线社会支持和心理社会适应之间的关系混合方法将利用半- 与兄弟姐妹进行结构化访谈，以绘制他们的社会生态网络，观察社会媒体互动， 这将为社会支持、社交媒体使用和心理社会调整的定量评估提供信息。 这项研究将确定如何以有意义的方式利用社会媒体的支持， 癌症儿童兄弟姐妹之间的干预、研究和支持。 培训计划：在授标期间拟实现的培训目标是：1）获得理论知识 与社会关系的相互作用有关的实质性知识和对社会心理的压力 2）应用和完善与工作相关的基本研究技能，并参与 儿童，青少年和他们的家庭受癌症影响的研究; 3）设计和开发一个安全， 高效的数据库和在线调查，将用于筛选，同意和收集数据。学习和应用 结构方程建模以调查收集的数据; 4）学习评估社会的研究方法 网络和社交媒体数据，可以应用在我未来的研究计划。 环境：护理学院在犹他州大学有一个强大的护理博士课程众所周知 感谢他们对美国国立卫生研究院的资助，以及对癌症和家族遗传研究的关注。此外，大学提供 为专业发展培训提供众多的跨学科合作机会， 研究包括与Intermountain Healthcare和Huntsman Cancer Institute的合作。

Project Summary/Abstract Being a sibling of a child diagnosed with cancer can be a lonely and unsettling experience. Necessarily, parents, other family and members of their social networks turn their attention to meeting the medical and support needs of the child diagnosed with cancer. Siblings of children with cancer have demonstrated a variety of poor psychosocial maladjustments including anxiety, depression, alienation, poor school functioning and lower quality of life. At the same time, up to 85% of adolescents report social media access and use, with many stating they are online multiple times a day. Emerging research suggests that these social media-mediated relationships and interactions (i.e., social networks) may serve as critical sources of support for this age group, and influence health outcomes more generally. According to the stress-buffering hypothesis, the perception of social support is a key factor in psychosocial outcomes in adolescents and their adjustment to living in a family affected by cancer. This proposal addresses two critical research objectives that have not been investigated among siblings of children with cancer. 1) Describe the role of social media within SoCwC’s self-identified social support network and 2) Examine how SM use influences the relationship between online social support and psychosocial adjustment. A mixed method approach will utilize semi- structured interviews with siblings to map their social eco-networks, observation of social media interactions, which will inform a quantitative assessment of social support, social media use and psychosocial adjustment. This study will identify ways in which social media support can be leveraged in meaningful ways for future interventions, study, and support among sibling of children with cancer. Training Plan: The proposed training aims to be achieved during the award period are: 1) Acquire theoretical and substantive knowledge relevant to the interplay of social relationships and stress on the psychosocial adjustment of children; 2) Apply and refine essential research skills related to working with and engage children, adolescents, and their families affected by cancer in research; 3) Design and develop a secure and efficient database and an online survey that will be used to screen, consent, and collect data. Learn and apply structural equation modeling to survey data gathered; 4) Learn research methods for assessing social networks and social media data that can be applied in my future program of research. Environment: The College of Nursing at the University of Utah has a strong nursing PhD program well known for their NIH funding and its focus on cancer and family caregiving research. Further, the University provides numerous opportunities for interdisciplinary collaboration for training for professional development and research including affiliation with Intermountain Healthcare and Huntsman Cancer Institute.