NVEADRC Outreach, Recruitment, and Engagement Core (OREC)

NVEADRC外展、招聘参与核心 摘要 我们的内华达州探索性阿尔茨海默病研究中心(NVEADRC)旨在减少痴呆症护理 农村社区的差距，并制定一项创新的研究计划，以调查可能的 农村阿尔茨海默病与阿尔茨海默病患者疾病轨迹的差异 相关痴呆症(ADRD)。先前的研究已经确定了关于农村痴呆症护理的两个主要问题 人口。首先是农村医疗专业人员缺乏诊断和管理痴呆症的技能，原因是 缺乏适当的医疗培训，缺乏对诊断和管理实践指南的遵守 AD/ADRD。因为农村地区诊断和护理痴呆症的第一个提供者是初级保健 对于初级保健提供者(PCP)，迫切需要在AD/ADRD中提供改进的继续教育，以应对 初级保健医生的老年患者需要检测和/或管理痴呆症。第二个问题是 农村人口普遍缺乏关于痴呆症和其他神经退行性疾病(NDD)的知识。在……里面 此外，由于人口密度低，缺乏基础设施，天气条件，以及 在社区活动中，农村社区的社会隔离程度更高，这是众所周知的风险 老年人患痴呆症的因素。解决农村人口痴呆症护理这一复杂的社会话题 为了使我们雄心勃勃的项目取得长期成功，我们决定促进一个强有力的外联， 招聘参与核心(OREC)从NVEADRC的起源开始。OREC将由调查人员组成 来自拉斯维加斯克利夫兰临床卢鲁沃脑健康中心(LRCBH)和内华达大学， 拉斯维加斯(UNLV)。OREC主要追求三个目标。在目标1中，OREC将使用其技术和 医疗合作者网络，对农村医疗专业人员进行痴呆症教育。在目标2中，OREC打算 通过利用全州范围的倡议、社区行动团体、 社区/部落/宗教领袖和协会(例如阿尔茨海默氏症协会)，以提高对 痴呆症的普通人群。这将通过研讨会、讲座、网站、 以及以外行术语写成的笔记本，目标客户是农村人口。OREC也将使用这些通信 船只邀请个人参与我们的农村研究队列。在目标3中，OREC将利用其说教 对有兴趣研究农村痴呆症的初级科学家进行指导的经验 医疗保健方面的差距。这些初级调查人员将至少参加一次由 OREC认识到农村人口在痴呆症护理方面的兴趣、关切和需求。我们 预计我们针对农村社区的外展工作将减少耻辱，并使痴呆症患者能够 充分参与其社区，同时也将痴呆症患者家庭联系起来，获得信息、支持、 并尽早提供服务，从而提高生活质量。

NVEADRC OUTREACH, RECRUITMENT ENGAGEMENT CORE SUMMARY Our Nevada Exploratory Alzheimer’s Disease Research Center (NVEADRC) aims at reducing dementia care disparities in rural communities and developing an innovative research program to investigate the possible differences in disease trajectory of rural patients suffering Alzheimer’s disease (AD) and Alzheimer’s disease related dementia (ADRD). Prior research has identified two major issues with regards to dementia care in rural populations. First is a lack of skills by rural medical professionals to diagnose and manage dementia due to both a lack of proper medical training, and a lack of adherence to practice guidelines for the diagnosis and management of AD/ADRD. Because the first providers to diagnose and care for dementia in rural areas are primary care providers (PCP), there is an urgent necessity to provide improved and continuous education in AD/ADRD to answer PCPs’ older patients needs with regards to the detection and/or management of dementia. The second issue is a general lack of knowledge about dementia and other neurodegenerative disorders (NDD) in rural populations. In addition, because of the low population density, lack of infrastructures, weather conditions, and scarcity of community activities, there is a higher level of social isolation in rural communities, which is known to be a risk factor for dementia in older individuals. To address this complex social topic of dementia care in rural populations and to make our ambitious project successful in the long-term, we have decided to foster a robust Outreach, Recruitment Engagement Core (OREC) from the genesis of the NVEADRC. OREC will comprise investigators from both the Cleveland Clinic Lou Ruvo Center for Brain Health, Las Vegas (LRCBH) and University of Nevada, Las Vegas (UNLV). There are three main goals pursued by the OREC. In Aim 1, OREC will use its technology and network of medical collaborators to educate rural medical professionals on dementia. In Aim 2, OREC intends to increase NDD awareness in rural communities by leveraging statewide initiatives, community action groups, community/tribe/religious leadership, and associations (e.g. Alzheimer’s Association) to improve the knowledge of the general population on dementia. This will be accomplished via a combination of seminars, lectures, websites, and notebooks written in layman terms targeting rural populations. OREC will also use these communication vessels to invite individuals to participate in our rural research cohort. In Aim 3, OREC will utilize its didactic experience to supervise the mentoring of junior scientists who have an interest in investigating rural dementia and healthcare disparities. These junior investigators will attend at least one rural community outreach event offered by OREC to become aware of the interests, concerns, and needs of rural populations in term of dementia care. We anticipate that our outreach efforts targeting rural communities will reduce stigma and enable dementia patients to fully engage within their communities, while also connecting families living with dementia to information, support, and services as early as possible, thus, improving quality of life.