DS-I Africa - LAW

项目摘要/摘要 拟议的项目将把重点放在使用数据科学促进健康的法律层面 非洲的发现和创新。因此，拟议的项目旨在补充其他 ELSI预计，这可能会更多地关注道德和社会影响。 在没有法律知识的情况下，科学家冒着启动健康研究项目的风险，结果却发现了这些数据 它们产生的能量不能按计划使用；如果不了解法律，科学家们可能会冒着 浪费资源，承担法律责任，甚至刑事制裁。因此，科学家需要澄清 关于在卫生研究中使用数据的“哈德”法。法律往往可以是多方面的- 层次化、复杂化，并且在不同司法管辖区之间可能有所不同。因此，为了促进健康发现和 利用数据科学的创新，将提供关于各种关键法律主题的法律清晰度，列出 下面。拟议项目的预期成果将成为科学家如何 这些主题中的每一个都符合法律规定。其影响将是那些计划 利用数据科学促进非洲健康发现和创新的项目(或与非洲合作者合作) 将被授权采取必要的行动以符合法律规定。 拟议的项目将具有广泛的管辖范围，涉及十二个非洲国家的法律。 国家。 将在三年内调查五个关键的法律主题：(1)知情同意的方式 数据的使用；(2)基因组数据中个人和社区权利的性质和内容；(3) 将个人地理空间数据用于公共卫生监测；(4)数据的跨境共享； (5)使用数据作为人工智能(AI)的基础。 拟议项目的一个重要交叉主题和目标是非殖民化和 与在卫生研究中使用数据有关的现有法律的非洲化。拟议的项目将 从当前趋势的角度批判性地接触十二个司法管辖区的现行法律 非洲法律哲学。预期结果是对法律创新和国际合作的建议。 司法管辖权协调。这些建议的影响将是赋予政策制定者 使有关法律更加符合非洲人民的需要和期望。 该项目团队由来自非洲不同地区的顶尖法学学者组成-吹嘘着 发表在同行评议期刊上的148篇论文的集体记录。该团队的核心专业知识是 数据的法律监管，以及非洲的法律哲学。因此，该团队完全有能力 成功执行提议的项目。

Project Summary/Abstract The proposed project will have a strong focus on the legal dimensions of using data science for health discovery and innovation in Africa. Accordingly, the proposed project is intended to complement other ELSI projects that may focus more on the ethical and social implications. Without knowledge of the law, scientists risk starting a health research project only to later find the data that they have generated cannot be used as planned; without knowledge of the law, scientists risk wasting resources, legal liability, and even criminal sanctions. Accordingly, scientists need clarity regarding the `hard' law that governs the use of data in health research. The law can often be multi- layered, complex, and may differ between jurisdictions. Therefore, to facilitate health discovery and innovation that uses data science, legal clarity will be provided on a variety of critical legal themes, listed below. The expected output of the proposed project will be practical guides for scientists on how to be legally compliant with regard to each of these themes. The impact will be that scientists who plan projects using data science for health discovery and innovation in Africa (or with African collaborators) will be empowered to take the required actions to be legally compliant. The proposed project will have a broad jurisdictional scope, involving the law of twelve African nations. Five critical legal themes will be investigated over a three-year period: (1) modes of informed consent to the use of data; (2) the nature and content of individual and community rights in genomic data; (3) the use of persons' geospatial data for public health surveillance; (4) the cross-border sharing of data; and (5) the use of data as basis for Artificial Intelligence (AI). An important cross-cutting theme and goal of the proposed project is the decolonization and Africanization of extant law related to the use of data in health research. The proposed project will critically engage with the extant law of the twelve jurisdictions from the perspective of current trends in African legal philosophy. The expected outcomes are recommendations for legal innovation and inter- jurisdiction harmonization. The impact of these recommendations will be to empower policymakers in Africa to make the relevant law more attuned to the needs and expectations of the people of Africa. The project team consist of leading law academics from different regions in Africa – boasting with a collective publication record of 148 articles in peer-reviewed journals. The team's core expertise is the legal regulation of data, and African legal philosophy. Accordingly, the team is perfectly positioned to successfully execute the proposed project.