NCCU RCMI Practice Based Equity Research Network (PBERN)

摘要 北卡罗来纳州(北卡罗来纳州)拥有五个以实践为基础的研究网络(PBRN)，由 大型学术研究中心和医疗保健系统没有或非常有限地参与免费 照顾未参保病人的社区诊所和从业者。北卡罗来纳州在健康方面在美国排名第32位 结果，该州被评为医疗保健第五差的州，婴儿种族健康差距令人担忧 死亡率、糖尿病、肾脏疾病以及许多慢性和急性疾病。北卡罗来纳州中部 大学(NCCU)少数民族院校研究中心(RCMI)成功和有效地参与了 服务不足的社区。这项提议旨在建立一个由RCMI领导的健康临床研究网络 公平(CRNHE)，以解决以临床为基础的研究中的差距，并改善未参保患者的医疗保健。这 创新的CRNHE被称为NCCU RCMI基于实践的股票研究网络(PBERN)将汇集在一起 大学生健康诊所、联邦合格健康中心(FQHC)、免费和慈善诊所以及地方 公共卫生部门，所有这些部门都广泛地为未参保和弱势人群提供服务。三位一体 UG3规划阶段的具体目标要求建立PBERN。管理核心(管理核心) 将监督和管理PBERN，包括成立患者/社区咨询委员会和外部 提供商咨询委员会，为财团起草章程，并为合作伙伴起草谅解备忘录 实践(SA1)。社区参与核心(CEC)旨在整合社区、患者、 和提供者通过联盟活动，并发展社区建议的健康意识和 使用NCCU流动卫生单位(SA2)的预防方案。临床研究实施的核心 (CRIC)将提供临床和卫生服务研究方法方面的培训，并支持财团成员 在生物统计、数据科学和调查设计(SA3)等领域。审评委还将与商业 人口健康管理平台，设计和规划电子健康记录(EHR)集成(期间 UH3阶段)跨网络诊所。在第二阶段(UH3)，审评委将执行严格和 有竞争力的试点项目计划(2个试点，为期2-3年)，并提供快速周期代金券(RCV)(3-6个月) 质量改进和实施科学项目(SA4)，并执行EHR集成、数据计划 为联盟成员提供存储和分析，以加快综合医疗服务研究和测量 并报告人口健康指标(SA5)。评价和传播股(EDU)将继续 评估并与两个核心(审评委、中评委)和RCMI协调中心密切合作，制定共同的 衡量标准并向公共机构提出建议，以获得成功的结果(SA6)。总括而言，建议的 PBERN将极大地增加以实践为基础的研究，寻求在北方实现医疗公平 卡罗莱纳州最脆弱的人遭受着健康差距。

ABSTRACT North Carolina (NC) is home to five Practice-Based Research Networks (PBRN) supported and maintained by large academic research centers and healthcare systems with no to very limited engagement with free community clinics and practitioners that care for uninsured patients. NC ranks #32 in the United States for health outcomes and is ranked the fifth-worst state for health care with alarming racial health disparities in infant mortality, diabetes, kidney disease, and many chronic and acute conditions. The North Carolina Central University (NCCU) Research Centers at Minority Institutions (RCMI) has successfully and effectively engaged underserved communities. This proposal aims to establish an RCMI-led Clinical Research Network for Health Equity (CRNHE) to address gaps in clinic-based research and improve health care for uninsured patients. This innovative CRNHE called as NCCU RCMI Practice-Based Equity Research Network (PBERN) will bring together college student health clinic, Federally Qualified Health Centers (FQHCs), free and charitable clinics, and local public health departments, all of which extensively serve uninsured and vulnerable populations. The three specific aims for the UG3 planning phase entail constructing the PBERN. The Administrative core (Admin Core) will oversee and manage the PBERN including formation of a patient/community advisory board and an external advisory committee of providers, craft a charter for the consortium, and memoranda of understanding for partner practices (SA1). The Community Engagement Core (CEC) will aim to integrate voices of the community, patients, and providers through consortium activities and develop community-recommended health awareness and prevention programs using the NCCU mobile health units (SA2). The Clinical Research Implementation Core (CRIC) will provide training in clinical and health services research methods and support consortium members in areas such as biostatistics, data science and survey design (SA3). The CRIC will also partner with commercial population health management platform, to design and plan for electronic health record (EHR) integration (during UH3 phase) across network clinics. During the second (UH3) phase, the CRIC will implement a rigorous and competitive pilot project program (2 pilots for 2-3 years) and offer rapid cycle vouchers (RCV) (3-6 months) for quality improvement and implementation science projects (SA4) and execute plans for EHR integration, data storage and analytics for consortium members to accelerate integrated health services research, and measure and report population health metrics (SA5). The Evaluation and Dissemination Unit (EDU) will continuously assess and work closely with the 2 cores (CRIC, CEC) and RCMI Coordinating Center to develop common metrics and make recommendations to public agencies for successful findings (SA6). In sum, the proposed PBERN will dramatically increase practice-based research that seeks to achieve health care equity among North Carolina’s most vulnerable suffering health disparities.