Information/Supportive Care Needs/Maryland Cancer Caregivers

描述(由申请人提供)：尽管国家在医疗保健方面的投资不断增加，但美国(美国)境内人口的发病率和死亡率指标、临床试验的应计费用、危险行为、对医疗保健系统的满意度以及生活质量仍存在巨大的健康差距。有限的卫生保健资源导致住院时间缩短，以家庭为基础的专业医疗护理的可获得性减少，对门诊医疗管理的依赖增加，对以家庭为基础的康复的重视程度增加。癌症患者的照顾者代表着一个重要的利益相关者群体，他们弥合了医疗保健提供者和患者之间的支持性护理差距。癌症患者的照顾者代表了一群不同的人，他们的需求可能因种族、收入和获得医疗保健资源的机会而不同。 这项名为《服务不足的马里兰州癌症照顾者的信息和支持性护理需求》(ISNUMCC)的试点研究由马里兰州区域社区网络(马里兰CNP)提交，解决了一个重要且研究不足的问题--服务不足的照顾者对癌症患者的需求。这项研究将是第一批检查癌症患者照顾者的医疗服务不足的信息和支持性护理需求的研究之一。 这项拟议研究的目标是评估服务不足的马里兰州癌症护理人员的信息和支持性护理需求。该项目的短期目标包括：a)描述非裔美国人和高加索城乡癌症患者照顾者的信息和支持性护理需求；b)确定照顾者支持的障碍；c)确定照顾者用来维持健康和提高其生活质量的现有资源。长期目标包括利用这项试点研究的结果开发一种干预措施，以减少社会人口统计学上不同的癌症患者照顾者群体的信息和支持性护理需求。

DESCRIPTION (provided by applicant): Despite the increasing national investment in health care, substantial health disparities remain that affect morbidity and mortality indicators, accrual into clinical trials, risk behaviors, satisfaction with the health care system, and quality of life among populations within the United States (U.S.). Limited health care resources have resulted in shortened hospital stays, decreased availability of home based professional medical care, an increased reliance on outpatient medical management and an increased emphasis on home based recovery. Caregivers of cancer patients represent an important group of stakeholders that bridge the supportive care gap between health care providers and patients. Caregivers of cancer patients represent a group of diverse people whose needs differ potentially by race, income and access to health care resources. This pilot study, Information and Supportive Care Needs in Underserved Maryland Cancer Caregivers (ISNUMCC), is submitted from the Maryland Regional Community Network (Maryland CNP) and addresses an important and understudied issue - needs of underserved caregivers for cancer patients. This study will be one of the first to examine information and supportive care needs in medically underserved caregivers of patients with cancer. The goal of the proposed study is to assess underserved Maryland cancer caregivers' information and supportive care needs. The short term goals of this project include a) describing information and supportive care needs of African American and Caucasian urban and rural caregivers of patients with cancer, b) identifying barriers to caregiver support and c) identify current resources caregivers utilize to maintain wellness and improve their quality of life. Long term goals include using results from this pilot study to develop an intervention to decrease information and supportive care needs across sociodemographically diverse groups of underserved caregivers of cancer patients.