National Information Resource on Ethics & Human Genetics

描述（由申请人提供）：国家伦理与人类遗传学信息资源（NIREHG）与国家生物伦理文献参考中心（NRCBL，由国家医学图书馆和其他来源的合同资助）合作，并与主题专家咨询委员会协商，建议： 1.继续确定、收集和编目有关遗传研究的伦理、法律的和社会影响的材料; 2.支持在以下书目数据库中检索这些材料：遗传学和伦理学、ETHX on the Web、PubMed和LOCATORplus;（将标记涉及由国家人类基因组研究所（NHGRI）资助编写的文件的所有书目记录）; 3.通过在互联网上提供全文来源的链接，提供对引用材料的访问;提供NIREHG文件传递服务;并建议其他数字访问或复印件的来源。 4.继续发展NIREHG的数字资产; 5.通过更新关于ELSI主题的范围说明的网络版，维护和进一步发展NIREHG网站;提供关于主要遗传学主题的QuickBibs;并通过使用网络爬虫软件，加强在选定网站上获取网络信息; 6.通过免费电话、印刷品、会议、课堂和网络，在图书馆提供数据库使用方面的参考援助和培训; 7.通过适当的会议和媒体宣传NIREHG的收藏和服务。

DESCRIPTION (provided by applicant): The National Information Resource on Ethics & Human Genetics (NIREHG), in cooperation with the National Reference Center for Bioethics Literature (NRCBL, funded by a contract with the National Library of Medicine and other sources) and with the consultation of an Advisory Board of subject matter experts, proposes: 1. To continue the identification, collection, and cataloging of materials on the ethical, legal, and social implications (ELSI) of genetic research; 2. To support the retrieval of these materials in the following bibliographic databases: Genetics and Ethics, ETHX on the Web, PubMed, and LOCATORplus; (all bibliographic records that refer to documents produced with funding from the National Human Genome Research Institute (NHGRI) will be tagged); 3. To provide access to the cited materials by offering links to full-text sources on the Internet, when available; offering a NIREHG document delivery service; and suggesting other sources for digital access or photocopies. 4. To continue to develop the digital holdings of NIREHG; 5. To maintain and further develop the NIREHG Web site by updating the Web editions of the Scope Notes on ELSI topics; featuring QuickBibs on major genetics topics; and enhancing access to web information at selected sites by using webcrawler software; 6. To provide reference assistance and training in database usage in the library, via a toll-free number, in print, at conferences, in the classroom, and via the Web; and 7. To publicize NIREHG's collections and services at appropriate conferences and via the media.