NIAAA - Improving the Lives of Children with FASD: An e-Learning Resource for Car

描述（由申请人提供）：Terra Nova学习系统热切期待开发、生产、测试和营销改善FASD儿童的生活：本提案中概述的护理人员电子学习资源项目。这种实用的护理人员资源将解决NIAAA的优先事项“提高护理人员和FASD患者的技能”，并响应公共部门日益增长的重要需求，其中胎儿酒精谱系障碍是一个持续关注的问题。Terra Nova认为，对护理人员的教育是改善受FASD影响的家庭生活的关键的第一步，必须得到实用的护理和自我护理工具的支持。建议的最终产品将包括旨在满足各种用户的需求、理解水平和学习风格的内容和资源。首先，将为患有FASD儿童的主要照顾者开发一门在线课程。本课程将全面介绍FASD的神经学基础、特征和保护因素。动画将用于加强关键主题的学习。第二，将创建资源材料，以促进提高护理技能，并支持护理者和家庭的整体健康和功能。利用各种媒体形式，这些资源将涵盖广泛的主题，并将包括：促进儿童功能改善的练习和策略；护理人员自我护理培训；以及一份关于FASD的DVD概述，可用于各种目的（例如，向可能与儿童互动的其他人传递有关FASD的信息，作为护理人员与学校人员沟通的工具，或向潜在的短期喘息提供者介绍这种障碍）。第三，一个重要的在线支持社区将使护理人员与全球同行社区保持联系。护理人员将能够创建他们自己的讨论线程，对其他人发起的讨论发表评论，并在一个开放的日志中进行互动，分享他们的个人故事。这门课程将是独特的，因为它关注广泛的护理人员需求，使其成为独一无二的资源。第一阶段的工作将包括与专家顾问合作，为所有材料制定大纲，并加上：1)一个单一主题的原型教育模块，其中包含酒精对发育中的大脑影响的动画描述；2)专业的故事板，描绘拟议的FASD概述DVD的外观和感觉；3)为护理人员提供支持的在线社区。最终产品的主要购买者包括寄养和收养机构、家庭支持、残疾服务机构、儿童保护机构以及其他侧重于FASD或残疾服务的机构。泰若希望在FASD护理人员支持设置中为这一创新项目找到一个强大的市场。公共卫生相关性：护理人员电子学习资源是一个创新项目，解决了胎儿酒精谱系障碍儿童护理人员的关键问题，填补了目前这一群体可获得的教育机会的空白。本课程将提供内容，以加强对这一系列疾病的理解，同时提供各种电子媒体工具，以支持护理人员的日常工作，以及解决重要自我保健主题的信息和策略。通过满足这种广泛的需求，泰若有信心，这门课程将在市场上是独一无二的，它将满足FASD儿童护理人员确定的关键需求。

DESCRIPTION (provided by applicant): Terra Nova Learning Systems enthusiastically anticipates developing, producing, testing, and marketing the Improving the Lives of Children with FASD: An e-Learning Resource for Caregivers program outlined in this proposal. This practical caregiver resource will address NIAAA's priority of "improving the skills of caregivers and individuals living with FASD" and responds to an important and growing need in the public sector where fetal alcohol spectrum disorder is an ongoing concern. Terra Nova believes that education of caregivers is a critical first step in improving the lives of families affected by FASD, and that it must be supported by pragmatic caregiving and self-care tools. The proposed end-product will consist of content and resources designed to meet the needs, comprehension levels, and learning styles of a variety of users. First, an online course for primary caregivers of children living with FASD will be developed. This course will offer a comprehensive overview of the neurological basis, characteristics, and protective factors of FASD. Animation will be used to enhance learning of critical topics. Second, resource materials will be created to promote improved caregiving skills, and to support caregiver and family overall health and functioning. Using a variety of media formats, these resources will cover a broad scope of topics, and will include: exercises and strategies to promote the child's improved functioning; caregiver self-care training; and a DVD overview of FASD that can be used for varied purposes (e.g. to relay information about FASD to others who may interact with the child, as a tool for caregivers during communication with school personnel, or to introduce the disorder to potential short-term respite providers). Third, an important online community of support will put caregivers in touch with a global community of their peers. Caregivers will be able to create their own discussion threads, comment on discussions initiated by others, and interact in an open journal to share their personal stories. This course will be unique in its attention to the broad scope of caregiver needs, making it a one-of-a-kind resource. Phase I work will include developing, in collaboration with expert consultants, outlines for all materials plus: 1) a single-topic prototype educational module containing animated depictions of the effects of alcohol on the developing brain; 2) a professional storyboard depicting the look and feel of the proposed FASD overview DVD; and 3) an online community of support for caregivers. Primary purchasers of the end-product include foster care and adoption agencies, family support, disability services, child protective agencies, and others whose focus is on FASD or disability services. Terra Nova expects to find a robust market for this innovative program in FASD caregiver support settings. PUBLIC HEALTH RELEVANCE: An e-Learning Resource for Caregivers is an innovative program that addresses key issues of caregivers of children with fetal alcohol spectrum disorder and fills a void in the educational opportunities currently available to this group. The course will provide content to enhance understanding of this spectrum of disorders, while offering a variety of e-media tools to support the daily work of caregivers, along with information and strategies to address important self-care topics. By meeting this broad scope of needs, Terra Nova is confident that this course will be unique in the marketplace, and that it will meet the critical needs identified by caregivers of children with FASD. .