Community Core

美国印第安人(Al)的癌症相关健康差距在美国是最大的，也是最不可能参与医学研究的人群之一。参与的障碍包括对医疗系统的不信任，获得护理的机会有限，以及文化上适当的资源有限。Al社区的有效研究方案通常依赖于社区和学术组织的合作网络，使用基于社区的参与性研究(CBPR)方法。过去，在Al社区建立了一个强大的CBPR团队，专注于减少他们不成比例的疾病负担 在堪萨斯大学医学中心的四年时间里，美国印第安人社区健康项目。我们与社区组织的伙伴关系非常成功，我们现在正式创建了一个合作伙伴联盟，其中包括部落、社区组织、学术机构和公司/政府机构，即美国印第安人健康研究和教育联盟(AIHREA)。我们都有一个共同的长期目标，即通过高质量的参与性研究减少Al社区的健康差距。社区参与核心的主要目标是确保CBPR原则的忠诚度，并确保通过CPC-AIHD进行的定性研究的严谨性和有效性。我们的次要目标是确保向社会传播研究成果，无论是正面的还是负面的。社区参与核心将致力于以下具体目标：1)监督CPC-AIHD内部进行的研究，以遵守CBPR的原则；2)保持纵向CAB，以指导中心的活动；3)创建时事通讯和互动网站，供社区成员和研究人员交流、传播信息和帮助招聘；4)每年举办社区研究论坛，将研究人员和社区成员聚集在一起；5)每年通过我们的青年大使计划，将4名高中生、4名本科生和4名研究生/医学生纳入研究；6)为ALHREA-CCR中进行的所有研究提供严格的定性数据收集和分析；以及7)为与CPC-AIHD相关的所有研究人员提供关于定性和形成性研究技术以及研究设计的指导。

American Indians (Al) suffer some of the greatest cancer-related health disparities in the United States and are some of the least likely to participate in medical research. Barriers to participation include mistrust of the medical system, limited access to care, and limited culturally-appropriate resources. Effective research programs in Al communities often rely on a collaborative network of community and academic organizations, using community-based participatory research (CBPR) methods. A strong CBPR team based in the Al community and focused on reducing their disproportionate burden of disease has developed over the past four years at the University of Kansas Medical Center, the Program in American Indian Community Health. Our partnership with community organizations has been so successful that we have now formally created an alliance of partners, including tribes, community organizations, academic institutions, and corporations/government agencies, the American Indian Health Research and Education Alliance (AIHREA). We share a long-term goal of reducing health disparities in Al communities through quality participatory research. The primary goals of the Community Engagement Core are to ensure fidelity to the principles of CBPR and to ensure the rigor and validity of the qualitative research conducted through the CPC-AIHD. Our secondary goal is to ensure dissemination of research results, both positive and negative, to the community. The Community Engagement Core will address the following specific aims: 1) To monitor research conducted within the CPC-AIHD for adherence to the principles of CBPR; 2) To maintain longitudinal CABs to guide center activities; 3) To create a newsletter and an interactive web site for community members and researchers to communicate, disseminate information, and aid in recruitment; 4) To hold community research forums annually to bring researchers and community members together; 5) To bring 4 high school students, 4 undergraduate college students, and 4 graduate/medical students into research through our youth ambassadors programs in each year; 6) To provide rigorous qualitative data collection and analysis for all studies conducted in the AlHREA-CCR; and 7) To provide guidance on qualitative and formative research techniques and study design to all researchers associated with the CPC-AIHD.