Conceptualization and Measurement of Lung Cancer Stigma

描述（由申请人提供）：肺癌污名化对受污名化的个人和公共卫生工作都具有深远的破坏性后果。初步数据表明，肺癌患者是基于吸烟状态的污名化，肺癌污名化对患者有负面的心理社会和人际关系影响。然而，非常需要澄清概念，并综合注重适当的衡量。拟议的研究将综合患者，供应商和已发表的文献的观点，形成一个连贯的概念蓝图，用于制定一个心理测量的健全措施，感知肺癌的耻辱。具体的研究目标是：1）通过文献回顾和患者访谈（N = 36）建立肺癌污名结构的概念框架; 2）根据患者访谈、临床专家评估和患者焦点小组构建初始项目库; 3）通过使用认知访谈和可读性分析减少和细化测量项目。这项研究代表了一个初步的努力，以完善概念化需要准确评估肺癌患者之间的耻辱，并产生一个理论推导的措施。这项研究是有意义的，因为它将提供一个心理测量的声音和文化敏感的措施，肺癌相关的耻辱发展的基础。这些发现将为定量评估所提出的措施提供基础，以及未来计划对肺癌污名的心理社会，沟通和行为相关性进行调查。最终，这项研究将指导干预措施的发展，以解决肺癌的耻辱及其后果。

DESCRIPTION (provided by applicant): Lung cancer stigma has far-reaching and devastating consequences for both stigmatized individuals and public health efforts. Preliminary data suggest that lung cancer patients are stigmatized based on smoking status and that lung cancer stigma has negative psychosocial and interpersonal effects for patients. However, there is a significant need for conceptual clarification and an integrative focus on appropriate measurement. The proposed research will synthesize perspectives from patients, providers and published literature into a coherent conceptual blueprint for developing a psychometrically sound measure of perceived lung cancer stigma. Specific study objectives are to: 1) develop a conceptual framework of the lung cancer stigma construct through literature review and patient interviews (N = 36), 2) Construct an initial item pool based on the patient interviews, assessments from clinical experts, and patient focus groups, 3) Reduce and refine measure items through use of cognitive interviews and a readability analysis. This study represents an initial effort to refine conceptualization needed to accurately assess stigma among lung cancer patients and generate a theoretically-derived measure. This research is significant because it will provide the basis for development of a psychometrically sound and culturally sensitive measure of lung cancer related stigma. The findings will provide a foundation for quantitative evaluation of the proposed measure, as well as future planned investigations into psychosocial, communication, and behavioral correlates of lung cancer stigma. Ultimately, this research will guide the development of interventions to address lung cancer stigma and its consequences.