Caring for BRAIN pioneers: Understanding and enhancing family and researcher support in neural device trials

摘要 这份补充材料的目的是与BCI先锋联盟的成员合作， 第一个植入式BCI研究参与者，以更好地了解和促进同伴支持 大脑先锋的结构。这项建议扩展了格兰特正在进行的神经伦理学工作 1 R 01 MH 130457 -01，仅考虑（1）家庭/护理伙伴提供的支持，以及（2） 研究人员提供的支持。本补充材料填补了当前R 01中的一个潜在空白：如何 研究参与者是否相互支持？在这项研究中，我们：（1）与成员进行接触， BCI先锋联盟关于促进BRAIN先锋同行支持的最佳实践，使用 世界咖啡馆办法; ⑵联合综合世界咖啡馆会议成果， 参与者共同创建一套最佳实践，促进对BRAIN Pioneers的同行支持。 这是生物伦理学研究，也为MSU初级学者提供能力建设。

Abstract The objective of this supplement is to work with members of the BCI Pioneers Coalition, led by the first implantable BCI study participants, to better understand and promote peer support structures for BRAIN Pioneers. This proposal expands the neuroethics work being done in grant 1R01MH130457-01, which only looks at support provided by (1) family/care partners and (2) support provided by researchers. This supplement fills a potential gap in the current R01: How do research participants support each other? In this study, we: (1) engage with members of the BCI Pioneers Coalition about best practices to promote peer support for BRAIN Pioneers, using the World Cafe approach; (2) Jointly synthesize results from World Café meeting with participants to co-create a set of best practices that promote peer support for BRAIN Pioneers. This is bioethics research, and also provides capacity building for the MSU junior scholar.